1. Pre-appointment interventions to involve parents in their children's health care: a rapid review

2. Theory of Family-Centred Care
Satisfaction with services
Service resources and supports
Parenting capabilities
(self-management)
Personal/Family well-being
Child behaviour (development and health)
Outcomes and benefits
Control appraisals of practitioner help-giving
Control appraisals of programme resources
Control appraisals of general life events
Parental Self-Efficacy
Relational
Active listening
Compassion & respect
Family strengths and capabilities
Participatory
Personalised care
Flexible
Family involvement, collaboration and partnership
Help-giving interactions
Dunst, C.,J., Trivette, C., M. and Hamby, W. (2007). Meta-Analysis of Family-Centred Helpgiving Practices Research. Mental Retardation and Develeopmental Disabilities Research Reviews. 12:

3. The (not-so) rapid review
a systematic search strategy focussed on published literature within specific databases
a single reviewer process with second reviewer consultations at key points (search strategy, list of included studies, and analysis)
focus on a single outcome construct (here parent involvement)
descriptive analysis

4. Population Intervention Comparison Outcomes Study design
Parents of children aged 0-16 years old with a specified health condition
Health professionals: Doctors, nurses, AHP’s
Interventions focused on involving parents in their children’s health and care, delivered prior to, or during the initial consultation.
Usual care
No comparator
Preparation for contact
Contact
Use of healthcare
Health status and well-being
Parent health behaviour
Child’s treatment outcomes
Outcomes related to health professionals
Health system outcomes
Randomised controlled trials (RCTs)
Systematic reviews

7. Results

9. Continuum of parent involvement
Consultation and instruction:
Give information
Give instructions and parents expected to follow them
Involvement:
Parents asked about their preferences
Professional prompts parent answers
Partnership and collaboration:
Shared leadership
Collaborative review and discussion
Written materials
shared decision making aids
Symptom management
Self-management
Carman et al. (2013). Patient and family engagement: A framework for understanding the elements and developing interventions and policies. Health Affairs. 32(2)

11. A survey of pre- appointment materials used by children’s therapy teams in England

13.
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