1. 2015/16 National Cancer Patient Experience Survey
Ruth Hendy, UHBristol Lead Cancer Nurse

3. 2015 NCPES
Inpatient and day case adult cancer patients, discharged from hospital 01/04/15 – 30/06/16
Sent postal questionnaire Sept – Nov’16
Response rate 66%
Results published July 2016
To be repeated 2016 (results 2017)
2015 revised methodology
Reduced questionnaire length (50 Qs re patient experience)
14 unchanged Qs, 21 slightly amended, 15 new.
Case mix adjusted results (according to Trust populations)

4. Head and Neck results
Results only published for UHBristol and Glos (104 responses combined) – need 21 + responses to a Q, to be published

5. Good practice Question Patient told sensitively that they had cancer
National average
UHBristol
Glos
Patient told sensitively that they had cancer 84 85 90
Patient given the name of the CNS who would support them 95 70
Patient found it easy to access the CNS 87 91 81
Patient had confidence and trust in all the Drs treating them 93 88
Patient had confidence and trust in all the ward nurses 72 67
Doctor had the right notes and other documentation with them 96 94
100
Patient was able to discuss worries and fears with staff during day case / outpatient visit 59 76
Patients average rating of care (very poor 0 to very good 10)
8.7
8.5
9.0

6. Areas for improvement Question
National average
UHBristol
Glos
Patient given easy to ready information about type of cancer 72 50 53
Possible side effects explained in an understandable way 61 63
Patient definitely involved in decision about their care and treatment 78 68
Hospital staff gave information about impact of cancer on day to day activities 81 66
Hospital staff gave family all the information needed to help care at home 58
Patient definitely given enough support from health and social care during treatment 54 30
Taking part in research discussed with patient 28 22 13

7. Headlines from additional 2015 patient experience
activity in UHBristol+ shared care patients
‘shared care’ provided genuine potential to negatively impact patient experience
A negative experience at the start (eg. delayed diagnosis, cancelled operation), will in most cases negatively impact the whole pathway experience
access to keyworker is paramount
‘enough’ care – do what you say and stop me getting anxious / worried

8. Next steps
SSG / MDT to agree priority areas, discuss and plan local actions
Collective CNSs to continue to collaborate on shared-care across pathway
Referrals/ handovers – continuity in care
Shared information (eg. pathway leaflet)
Continued roll-out of ‘recovery package’ across SSG
Holistic needs assessments
Attendance at Health and Wellbeing events / clinics
Treatment summaries for GPs