1. 8th November 2018 David Innes, Chair
Chronic Lymphocytic Leukaemia Association
Join us today and together we will fight CLL 1

2. Join us today and together we will fight CLL
Basic data on CLL in UK
4220 new cases each year
72 median age for treatment
29,300 patients (all patients diagnosed in last 10 years)
Most important leukaemia affecting adults in UK
Blood cancer is now 3rd biggest killer in UK
Join us today and together we will fight CLL

3. Join us today and together we will fight CLL
Make Blood Cancer Visible Sept 2018
Focus for next 12 months is to get policy makers to accept that blood cancer deserves the same treatment as the so-called “big 4”
Met top team from NHSE this week
Also working separately with Leukaemia Care on guidelines for patient diagnosis
Join us today and together we will fight CLL

4. Join us today and together we will fight CLL

5. Services we offer to members
Helpline
Health Unlocked
Info on web site
Conferences
Join us today and together we will fight CLL

6. Join us today and together we will fight CLL
Recent achievements
Ibrutinib!
New trustees
Surveys
Join us today and together we will fight CLL

7. Join us today and together we will fight CLL
Work in progress
Website will be redeveloped
Information booklet
New look news bulletins by
Janssen patient voice initiative
Join us today and together we will fight CLL

8. Join us today and together we will fight CLL
Fundraising
Thanks to all members who have raised money for us recently
Ideas for future activities
Sponsorship – e.g. London 10k run
Coffee mornings
Cake sales
Etc etc
Join us today and together we will fight CLL

9. “How did you hear about CLLSA?”
Almost 300 replies (some multiple) – summer 2018
Biggest source – Internet 65%
Clinic/consultant/nurse – low at 19%
CLLSA leaflet – only 11%
Action
Focus on maximum exposure for CLLSA in search engines
Work with clinics etc to get the CLLSA message across
Join us today and together we will fight CLL

10. Join us today and together we will fight CLL
Plans for next 12 months
Increase membership from 2500 to 3000
Increase income to £100,000 - £40,000 from pharma, £60,000 from fundraising local and national, including legacies
6 conferences in 2019
Liverpool January
Cambridge March
Bournemouth May
Newcastle July
Nottingham September
London November
Change charity to CIO
Join us today and together we will fight CLL