1. A Nursing Perspective on Improving Outcomes for Patients With Hemophilia

3. Program Goals

4. Introduction

5. Newly Diagnosed Hemophilia A in an Infant

6. Meeting Patients and Family Members “Where They Are At”

7. Comprehensive Care at Hemophilia Treatment Centers Multidisciplinary Care Team Members

8. Meeting Patients and Family Members “Where They Are At” (cont)

9. Source of Medical Care and Mortality

10. Prophylaxis and “On-Demand” Therapy Definitions

12. Meeting Patients and Family Members “Where They Are At” (cont)

13. Transitioning From Adolescence to Adulthood

14. Transition in the Setting of Hemophilia

15. Some “Red Flags” for Nonadherence to Factor Prophylaxis

16. Bleeds: Patient Education

17. Adherence to Prophylaxis Associated Factors

18. Meeting Patients and Family Members “Where They Are At” (cont)

19. Conclusions

20. Abbreviations

21. References

22. References (cont)

23. References (cont)