1. Registration is Open:

2. Workshop on Natural History Studies of Rare Diseases: Meeting the Needs of Drug Development and Research
Importance of Natural History Studies
Provide understanding of the etiology and progression of rare diseases
Yield information on biomarkers and other correlates of clinical outcome
Workshop Highlights
Discussions on principles and applications of studies of the natural histories of rare diseases
Session topics related to study designs and case studies
 Audience
Academic and clinical researchers, industry R & D, public health agencies, disease advocacy groups