1. Immunoglobulin Database Update
Dr Rob Hollingsworth
Head of MDSAS

2. Thank you for your support of the database!
4/8/2019 1:11 AM
Thank you for your support of the database!
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3. Database Services Recap
4/8/2019 1:11 AM
Management of product shortages
Support for Ig procurement and monitoring
Safety and recall management
Prescribing audit
CQUINs and Dashboards
Commissioning support
Guidelines and efficacy/clinical review
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4. Data Requests Regional commissioning hubs NHS England
4/8/2019 1:11 AM
Regional commissioning hubs
NHS England
National Services NHS Scotland
Commercial Medicines Unit (CMU)
Methods
Pharma
UKPIN etc.
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5. Database Status Update
4/8/2019 1:11 AM
Database Status Update
Almost 82,000 patients registered with 96,000 treatment episodes
Multiple specialities and 140+ conditions
1,100,000 separate infusion entries
160 Trust’s submitting data (England, Scotland and Northern Ireland)
Over 41 million grams of immunoglobulin recorded
1,100 Active database users
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6. Increasing Annual Usage of Ig
4/8/2019 1:11 AM
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7. Top 20 Trusts (Patients Treated) 4/8/2019 1:11 AM
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8. Top 20 Trusts (Usage) 4/8/2019 1:11 AM
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9. Annual Report 2018 www.igd.nhs.uk 4/8/2019 1:11 AM
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10. Immunoglobulin Database Updates
Recent Releases
Version 5.5 – 5.8
Pilot of Patient Home Therapy Recording System - Haemtrack
Improved security allow user to unlock account
Closed down inactive treatment episodes
Infusion upload system improved – now allows 1200 records
Auto submission of dashboards added
Improved search system including search by batch number
Improved reporting and migration to SSRS2017

11. Update Roadmap Update database to reflect new commissioning policies
Rollout of patient home therapy monitoring – Haemtrack
Dynamic upload forms – automatic product updates
Upload from EPIC EPR
Dashboard information automatic submission to NHS England
Merge Panel Episode pilot process
Reports updated to latest technology SSRS2017
Prior approval?

12. Database Support Calls
Problem Type
Number
Account Creation
373
DB Data Change
294
Information 96
Reports Related 65
Procedural 64
Record Deletion 40
Staging
Other 39
Locked Account 27
Username Reminder
Password Reset 25
Configuration Change 18
Software Fault 15
Known Issue 14
Patient Removal
Data Request 12
Website Update 10
Disable Account 7
System Suggestion 3
Browser Issue 2
Product Addition
Grand Total
1187
Trusts can create their own user accounts

13. Account Management Functionality

14. Automated Uploads 40 Hospitals using the spreadsheet infusion upload
In the last year:
40 Hospitals using the spreadsheet infusion upload
6 Hospitals currently using the follow-up upload
18 Hospitals currently using the Ig request upload

15. Future Possible Database Developments
Electronic Referral Management and Image Capture
ERIC - Electronic referral, triage and advice & guidance
SiD App - Secure Image Data, captures and transfers images to NHS systems
Information governance approved
Use own device to capture images (images never stored on device)
Successfully used in : Dermatology, Wound care, Burns, Plastics,
Orthoplastics, Spinal Cord Injury, Vascular, etc.

16. 1 2 3 Demo Spinal Demo 4/8/2019 1:12 AM Scan QR code Take picture
Upload
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17. Haemtrack Home Diary System
Future Database Developments
Haemtrack Home Diary System
1.5 Million Entries by Patients
Smartphone compatible
Multiple language support
Particular real-life experince of data capture from patients
Available on multiple platforms, Apps, responsive website
Image capture support

18. Conclusion
The database and the work of Trusts to provide information to it, continues to be crucial to successfully manage the many challenges of Immunoglobulin therapy