1. HIV Patient ART Monitoring Meeting: International Conference Centre, Geneva 29-31 March 2004
Summary

2. Objectives of the meeting (1)
Harmonize collection of three data sets
Basic info at patient level
Linkages with other systems
Mechanisms for collection
Reporting and feedback at various levels
Data systems

3. Cross Cutting Issues Diverse participants--? Improved linkages
Settings (infrastructure, volume, etc)
Chronicity
Data needs
Data collection
Timeliness
Quality improvement
Confidentiality/Security
Data use/Data feedback

4. What have we achieved? Refinement of Patient care/treatment card
Refinement of program monitoring information
Better understanding of data capturing systems
Explored linkages/cross cutting issues
Identified next questions and steps forward

5. Recommendations
Further refinement of patient data card and program monitoring information/registeries
Linking treatment card with registries
WHO recommendations on confidentiality
Early warning to detect supply stock outs to rapidly respond
How to “de-identify” data sets
Selection of data capturing systems (short and long term)
Dissemination of recommendations
Feedback-two way

6. The Big Questions How will we learn from this? How will we coordinate?
Data uses and rationing?
What about long term goals?
Sustainability indicators
Financing sources
Cost for treatment and commodities
Staffing patterns
Sector wide impact
Capacity to scale up
Impact indicators
Long term survival
Quality of life/productivity
ARV resistance
Incident infections