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Immunoglobulin Database Data update 2017/18
Mark Foster
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01/ CQUIN results & ITP data
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CQUIN 1 - Data entry time for infusions < 3 months
Year Percent 2017/18 95% 2016/17 90%
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CQUIN 2 - Patients with recorded weight
Year Percent 2017/18 98% 2016/17 60%
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CQUIN 3 - Outcomes reported
Year Grey outcomes Blue ST Outcomes 2017/18 (Q1 / Q2) 78% 83% 2016/17 (Q1 / Q2) 31% 34% 2015/16 (Q1 / Q2) 23% 28%
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CQUIN 4 – Long-term blue patients with recorded annual review
Year Patients Reviews Percent 2017/18 4945 4014 81% 2016/17 4800 1127 24%
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ITP – Dosing adjustment
2015 & 2016 <=1g per Kg - 40% >=2g per Kg – 60% 2017 <=1g per Kg - 57% >=2g per Kg – 43% 2018 (YTD) <=1g per Kg - 71% >=2g per Kg - 29%
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ITP – Dosing 2016/17 338,000g 2017/18 253,000g -25% (85,000g) Savings of £2.9 million
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02/ Immunoglobulin use 2017/18
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Recorded volumes Year Patients Grams 2017/18 17,231 +6% 5,750,000 +7%
2016/17 16,230 +11% 5,350,000 +16% 2015/16 14,457 +10% 4,600,000
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Usage by treatment regime
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Patients treated by region 2017/18
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Patients by speciality
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Recorded usage by speciality
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Immunology Diagnosis 2015/16 % Change 2016/17 2017/18
Primary immunodeficiencies 1,186,409 +6% 1,357,636 +14% 1,473,946 +19% Secondary antibody deficiencies 324,392 +34% 467,580 +44% 597,635 +28% Specific antibody deficiency 57,063 +15% 74,033 +30% 83,974 +13% Impaired specific antibody production 35,785 -19% 35,403 -1% 34,199 -3% Thymoma with immunodeficiency 7,456 +17% 10,782 +45% 13,863 +29% Other Conditions 12,866 -14% 12,352 -4% 11,103 -10% HSCT in primary immunodeficiencies 2,297 +159% 3,848 +68% 4,018 +4% Total 1,626,267 +10% 1,961,634 +21% 2,218,737
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Neurology Diagnosis Total 2015/16 % Change 2016/17 % 2017/18 CIDP
936,345 +8% 1,080,528 +15% 1,202,247 +11% Multifocal motor neuropathy 471,338 +12% 550,028 +17% 614,838 Myasthenia gravis 180,488 +5% 201,480 226,458 Guillain–Barré syndrome 140,850 - 168,861 +20% 183,863 +9% Inflammatory myopathies 111,145 155,209 +40% 162,793 Stiff person syndrome 40,062 -5% 47,691 +19% 55,309 +16% Other Conditions 49,481 +13% 52,442 +6% 53,698 +2% Paraprotein-associated demyelinating neuropathy 41,792 +7% 43,863 44,561 Rasmussen syndrome 6,290 +86% 9,178 +46% 8,104 -12% Total 1,977,791 2,309,279 2,551,870 +10%
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Haematology Diagnosis Speciality total 2015/16 % Change 2016/17
2017/18 Immune thrombocytopenic purpura - Acute 261,965 +19% 279,644 +7% 216,519 -23% Other Conditions 21,985 31,473 +43% 41,382 +132% Alloimmune thrombocytopenia 25,577 +90% 30,798 +20% 28,241 -8% Autoimmune haemolytic anaemia 23,199 34,616 +49% 28,581 -17% Immune thrombocytopenic purpura - Persistent 72,575 +30% 58,432 -19% 36,370 -38% Coagulation factor inhibitors 16,305 -2% 23,160 +42% 21,310 -80% Haemophagocytic syndrome 9,681 +8% 10,920 +13% 13,426 +23% Speciality total 440,058 +20% 481,050 +9% 395,010 -18%
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03/ Product Usage
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Yearly IV product usage
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Yearly IV product usage
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Yearly SC product usage
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04/ Data outputs & requests
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Data output Trust reports on local database
Monthly commissioning reports Specialised services dashboards Local reports Methods subscription report CQUINS Commissioners reports Information service Annual Report Individual requests from stakeholders
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Data requests 2017/18 Kiovig supply issues
Improving value project - Inflammatory myopathies SRIAP dataset Commissioning requests Usage reports for CMU Neurology – GIRFT Active patients in commissioning hub CMU sales Vs MDSAS usage
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Kiovig supply issues – March 2018
Provided multiple reports to support NHSE & CMU Carried out emergency stocktake of immunoglobulin Supported the forecasting of required volumes for remaining period of the FW
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Summary Database has been crucial to supporting immunoglobulin strategy 2017/18 saw record volumes recorded once again ITP cost savings achieved – increased 1g per Kg dosing Utilise grey outcome results for evidence review Dose recording method needs to be addressed Action trust mergers Challenging year ahead – database team ready to support
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Contact support@mdsas.com +44 (0)161 277 7917
City View House 5 Union Street Ardwick Manchester M12 4JD mdsas.com
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Immunoglobulin Database The Royal College of Physicians, London
Annual Meeting 2018 The Royal College of Physicians, London December 2018
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