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IAN research Home Page

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9. Immediate feedback to parents
Mother Basic History Questionnaire

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HOMEPAGE
In addition to the IAN Research site, there is also an IAN Community site
The IAN Community is basically an online meeting place where everyone concerned with autism can learn more about autism research, from parents to politicians to the media.
To encourage participation in autism research, the IAN Community will make parents knowledgeable consumers of research. It will provide parent-friendly, evidence-based information about autism, explain the value of research in general, and give updates on current and future research studies. 10

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The IAN Community includes articles about several autism topics that parents may be interested in learning more about. For example, parents may be interested in learning more about challenging behaviors and how common ADHD is in children with autism.
They can read evidence-based articles on their topic of interest right on the Community site. 11

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At the end of articles featured on the IAN Community site, there is a list of IAN research questions that are related to the featured article.
Parents can click on these questions and view current data from IAN Research that pertains to the article they just read.

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Here is an example of IAN research results that relate to the article on autism and behaviors associated with ADHD. In our group of pilot registrants, 28% also had a diagnosis of an attention deficit disorder. 13

15. Why parents like IAN
We can do “research in our pajamas” or during lunch breaks
Start and stop whenever we like
Provide data once, let it be used by many
Guam, North Dakota, Alaska, Palau, Military families etc.. Can all participate!!!!!!
IAN recognizes that we (as parents) are the experts on autism

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