1. Patient team members and stories
19th March 2008
Patient team members and stories
Presenter: Jonathon Gray & Peggy Edwards
Patient team members and stories

2. Planning the Interviews
Patient Story
Full narrative
Maybe captured as a written account, or recorded interviews. Best to consider all potential uses and prepare accordingly
Learning
Purpose: To improve care
How: Generating dialogue within teams; identifying needs; creating improvements, feedback outcomes (from Discovery)
Campaign: Learning Sessions, How to Guides, Intranet dialogue.
1 Story - 4 Applications
Collecting stories for the 1000 Lives Campaign
Education
Purpose: To see the patient as equal to the treatment; enabling a focus on the patient and not just the outcomes.
How: to follow
Campaign: Learning Session, How to Guides, Intranet dialogue
Media
Purpose: To validate the Campaign;
Change a public mindset;
Endorse good work and draw attention
to flaws in the system
How: Features in press/tv/web
Campaign: Press Releases, Case Studies, Feature articles
Inspire
Purpose: To provide motivational
reminders to frontline staff of
‘Why they do,what they do’
How: Distribute for use on Trust intranets, newsletters and in team meetings and conferences
Campaign: Newsletters, E-bulletins, intranet/websites.
Planning the Interviews
Finding the stories
Framing the questions
Holding the interview
Storage and retrieval
Campaign Connectors
Content areas
Hearts and minds
Healthcare improvement
Local feedback
Technicalities
Written, audio, video
Editing
Photography
Determining Uses
Patient team members and stories

3. Why Patient stories Patient team members and stories
To find out about patient experiences of their local health service.
To inspire staff and teach future doctors and nurses.
To learn what can be improved and how it’s been done.
To help spread the Campaign’s message and achievements.
Patient team members and stories

4. How do we collect the stories?
To use a questionnaire to help
patients to tell us their story in their own
words.
When a story collected via a questionnaire is
particularly relevant to the Campaign’s work we
hope to follow up with a filmed interview.
Patient team members and stories

5. The questionnaire: Describe what happened.
What was the main good thing about your experience?
What was the main bad thing about your experience?
What would have been the one thing that would have made a difference?
What would be the one message you would tell your Local Health Service after your experience?
Patient team members and stories

6. The consent form Patient team members and stories
Patients’ Stories Consent Form
(Please fill with black ink using BLOCK CAPITAL letters and return to:
1000 Lives Campaign Team, 14 Cathedral Road, Cardiff CF11 9LJ
I ………………………………………………………. have read and understood the information sheet detailing how the stories will be used and shared.
Anything you tell us will be treated anonymously – your name will not be passed on to anyone else.
There is no obligation on you to take part in this process.
Name (print characters please)……………………………………………………………………………
Signed……………………………………………………………………………………………………………………
Date……………………………………………………………………………………………………………………….
Contact number …………………………………………………………………………………………………..
address ……………………………………………………………………………………………………….
Patient team members and stories

7. The filmed interviews Patient team members and stories
Only stories with direct involvement with areas covered by the 1000 Lives Campaign will be considered for filming.
We will contact the story-teller to ask permission to film them telling their stories.
The patient will be filmed telling their stories in their own words.
They will be filmed in a place convenient to the patient by a professional film crew. No one involved in the patient’s experience will be involved in the interview.
They will be used during local, national and international events.
A new consent form will be required.
Patient team members and stories