1. Wrote literature review and beginning to develop research proposal
Alison Mullen
Newcastle University
Lay summary
Decisions about gastrostomy feeding in adults with learning disabilities (LD) who lack capacity to consent are often challenging and emotive. Research with other client groups indicates the meaning of oral vs gastrostomy feeding for families is complex, but this has not been explored with adults with LD.
Question/Rationale
Identifying gaps in research concerning decision making for gastrostomy in adults with learning disabilities (LD).
What did you do?
Wrote literature review and beginning to develop research proposal
Read and critically reviewed articles
Searched for articles
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What did you find out?
Very little research has been conducted which has explored gastrostomy outcomes and decision making in adults with learning disabilities.
Next steps: Further development of research proposal for HEE/NIHR CDF application in based on shared decision making
Implications: Effective gastrostomy shared decision cannot occur without better understanding of factors important to clients and families