1. Community Scientist Academy
05/22/2018
Community Scientist Academy
Session 1
Research Process, Types, and Partnerships
Instruct participants to complete pre-session evaluation (jrm).
Deleted Slide 2 – moved info to original Slide 4 (now slide 3)
ORIGINAL WORDING FROM FORMER SLIDE 2:
Complete the Pre-Session Evaluation.
Make notes of your answers to these questions on your index card:
What is your name?
How did you learn about the Community Scientist Academy?
Why did you decide to participate in the Community Scientist Academy?

2. Welcome and Introductions
05/22/2018
Community Scientist Academy (CSA) Team
5:30
Kate Stewart
Nicki Spencer
Rachel Hale

3. Welcome and Introductions
05/22/2018
Make notes of your answers to these questions on your index card:
What is your name?
How did you learn about the Community Scientist Academy?
Why did you decide to participate in the Community Scientist Academy?
Nicki
5:33
We have 30 seconds each to introduce ourselves and answer the questions. Rachel will be timing us!!!

4. 05/22/2018
TIMER
Camille
5:34

5. Who or What is a TRI? Translational Research Institute
05/22/2018
Who or What is a TRI? Translational Research Institute
Established in 2009
Clinical and Translational Science Award(CTSA) from the National Institutes of Health (NIH) National Center for Advancing Translational Sciences (NCATS)
Accelerate the process of turning research findings into practice
“Bench-to-bedside” and “bedside-to-community”
Transform research into new health care advances
Notes below indicate that TRI was established in 2011 – slide indicates 2009 (jrm)
** It was suggested that Slide 8 “What is Research” should precede this slide ** (jrm)
ORIGINAL SLIDE WORDING:
Established in 2009
Clinical and Translational Science Award(CTSA) from the National Institutes of Health (NIH) National Center for Advancing Translational Sciences (NCATS)
Accelerate application of research findings into practice
“Bench-to-bedside” and “bedside-to-community”
Translate research into new health care advances
Nicki
5:41
Can anyone tell me who or what is the TRI?
TRI stands for Translational Research Institute. It was established in 2011 with funding from the Clinical and Translational Science Award from the National Institutes of Health National Center for Advancing Translational Sciences.
I bet you are still thinking… I still don’t know what the TRI does. Well the purpose of the TRI is to help accelerate research findings into practice to directly help human health
I like to use examples: So what’s a condition that has been in the news recently? The Zika virus!

6. (See the handout in your packet later for more information!)
What is “Translation”?
05/22/2018
“The process of turning observations in the laboratory, clinic and community into interventions that improve the health of individuals and the public.”1
Translation translated = Making sure helpful scientific discoveries get put into practice!
(See the handout in your packet later for more information!)
Nicki
5:42
1 National Center for Advancing Translational Sciences.

7. Community Scientist Academy
05/22/2018
Purpose: To increase awareness and understanding of research and to increase participation in multiple aspects of the research process.
Overview:
Session 1: Research Process, Types, and Partnerships
Session 2:Study and Intervention Design
Session 3: Implementation, Analysis and Dissemination
Session 4: Basics of Research Funding
Session 5: UAMS and TRI Research Involvement Opportunities
Session 6: Graduation Celebration and Next Steps
ORIGINAL WORDING:
Purpose: To increase awareness and understanding of research and participation in multiple aspects of the research process.
Camille
5:46

8. What is Research?
05/22/2018
A systematic (organized, planned) process used to develop or contribute to generalizable knowledge.
There are many types of research.
ORIGINAL WORDING:
A systematic (organized, planned) process used to develop or contribute to generalizable knowledge.
There are many types of research.
Kate
5:44

9. Examples of Ways to Get Involved In Research
05/22/2018
Examples of Ways to Get Involved In Research
Individuals:
Organizations:
Registries / Notification Lists
Host Community Visits
Recruitment
UAMS/ACH Text Alerts
Community Study Site
Research Participant
Preceptorship/Practicum Site
Fiscal Intermediary
Community Review Board (CRB)
Research Partner
Community Advisory Board (CAB)
Grant Reviewer
Team Member (e.g. Data Collector)
Community Co-Investigator
Mentor Jr. Researchers and Students
Camille
5:48

10. 05/22/2018
Camille
5:50

11. Collect and analyze your data
05/22/2018
What is the Traditional Research Process?
Identify the
PROBLEM
Devise a
PLAN
ACT
To implement your plan
OBSERVE
Collect and analyze your data
REFLECT
And share

12. “Research-ese” for Steps in the Research Process
05/22/2018
“Research-ese” for Steps in the Research Process
Define the research question
Identify the
PROBLEM
Devise a
PLAN
ACT
To implement your plan
OBSERVE
Collect and analyze your data
REFLECT
And share
Study Design, Develop Study Methods, Instruments
Dissemination
Write grants, obtain funding, write study protocol, obtain IRB approval
Study Implementation

13. 05/22/2018
Research Process: Identifying “the Problem” & Developing a Research Question
How do researchers decide what issue to study?
Who contributes or participates in this process?
Where does the research question come from?
Kate

14. What is Your Experience with Research?
05/22/2018
What is Your Experience with Research?
Think of how you are or have been involved in research.
Find a partner
Discuss the question: “If you are or have ever been involved in a study(ies) tell us what the most recent one was about.”
When you hear the bell, switch partners
Repeat
Nicki
This is the Vote with Your Feet Exercise
Place signs on walls that say:
Researcher / research team member / Community Partner
Community Advisor to Research Team
Study Participant – Community, Survey respondent, Healthy Volunteer
Other Role
Have Not Been Involved in Research

15. BREAK – 5 minutes

16. Examples of Types of Research
05/22/2018
Basic research – studies of the body’s cells and molecules – to find out how they function.
Clinical studies:
Testing medications or procedures in patients or healthy volunteers
Reviewing medical records
Lab studies of blood or other human tissue
Survey research – phone, in person, completed by yourself
Health services research – studies about healthcare quality, access, and cost
Community-based interventions – healthy eating, exercise, etc.
Kate
Basic research – for example basic research on cancer might look at the role of different molecules in starting or stopping cancer.

17. Traditional versus Participatory Research
05/22/2018
Community-Based Participatory Research (CBPR)
CBPR is a collaborative research approach that is designed to ensure and establish structures for participation by communities affected by the issue being studied, representatives of organizations, and researchers in all aspects of the research process to improve health and well-being through taking action, including social change.
Kate – 5 minutes
Viswanathan M, et al ARHQ Evidence Report 99: Community-based Participatory Research:
Assessing the Evidence accessed on 9/2/09 at

18. Traditional versus Patient Centered Outcomes Research (PCOR)
05/22/2018
Patient Centered Outcomes Research (PCOR)
Helps people and their caregivers communicate and make informed healthcare decisions, allowing their voices to be heard in assessing the value of healthcare options.
Kate

19. Collect and analyze your data
How are CBPR and PCOR Different?
We do all the steps together.
Including Identifying the problem
Identify the
PROBLEM
Devise a
PLAN
ACT
To implement your plan
OBSERVE
Collect and analyze your data
REFLECT
And share

20. Collect and analyze your data
How are CBPR and PCOR Different?
We do all the steps together.
Including Identifying the problem
Identify the
PROBLEM
Devise a
PLAN
ACT
To implement your plan
OBSERVE
Collect and analyze your data
REFLECT
And share
Ideally, researchers and community members, patients, families, or others affected by the issue develop a partnership before you start the process!

21. Institutional Review Boards (IRB)
05/22/2018
Institutional Review Boards (IRB)
Researchers must submit their studies for IRB review
IRB determines if activities require review
Research must be approved before activities can start
Studies not meeting ethical standards are denied approval
IRB also monitors approved studies to assure they are conducted ethically
Kate
ORIGINAL WORDING:
IRB determines if activities require review
Researchers must submit their studies for IRB review
Research must be approved before activities can start
Studies not meeting ethical standards are denied approval
IRB also monitors approved studies to assure they are conducted ethically

22. Guest Presenter Institutional Review Board (IRB) Basics
05/22/2018
Institutional Review Board (IRB) Basics
Pamela Killebrew, B.S.N., RNP, CCRC, CIP
IRB Director
UAMS Institutional Review Board
Camille

23. Debrief & Wrap-up
05/22/2018
Any questions