1. Congenital Heart Disease Network – South Wales and South West
Network Website
6th December 2016

2. Aims of Website
Primary point of access for information for patients, clinicians and families affected by CHD in SWSW region
A resource that clinicians will refer to / use to support conversations with patients
Standardised design / brand to provide assurance over single pathway / consistency of care
Synergy with other websites / future developments (e.g. apps) so that finding information is intuitive / logical
Simple to navigate – 3 clicks to key information
Content and function is driven by what users want and can be accessed by mobile as well as desktop
Start with the principle of doing a limited number of things well, but without prejudicing development of the site to achieve longer term goals

3. Access Routes

4. User Considerations User Reason for access Key Requirements
Content types
Patients and families:
Understand care / pathway
Assurance / support
Specific concern / clinical question
Patient education / engagement events
Single point to access all info
One message, regardless of location
No more than 3 clicks
Patient-friendly information
Mobile access / app for key documents
Pathway overview
Patient information sheets
Condition specific advice
Hospital details
Links to support groups
Quality / outcome measures
Key events / news
FAQs
Clinicians involved with CHD care (directly – specialists, and indirectly – e.g. GPs):
Clinical advice / information
Aiding discussion with patients
Updates on network, research, M&Ms etc.
Key publications / blog updates
Education and training opportunities
Intuitive – direct access to protocols etc.
Can access easily from clinic (firewall)
Possibly access to secure area
?notification – e.g. for new publications
Clinical protocols
Minutes
Publications
Updates / news / events
Patient Support Groups:
Update on key events in network
Linking patients to their groups
Provides an overview of their group
Links to their website
Summary of each group

5. User
Reason for access
Key Requirements
Content types
Patients and families:
Understand care / pathway
Assurance / support
Specific concern / clinical question
Patient education / engagement events
Single point to access all info
One message, regardless of location
No more than 3 clicks
Patient-friendly information
Mobile access / app for key documents
Patient journey overview
Patient information sheets
Condition specific advice
Hospital details
Links to support groups
Quality / outcome measures
Key events / news
FAQs
Patient Support Groups:
Update on key events in network
Linking patients to their groups
Provides an overview of their group
Links to their website
Summary of each group

6. Work shop
What do the key users want / what will make them access the site?
What content is required? What good examples do we want to follow?
How do we get more patient views?