1. Paediatric Donors and Transplant Patients

2. Deceased donors, transplants and active transplant list in the UK
Paediatrics only (<18 yrs)

3. Living kidney donor transplants in the UK
Paediatric recipients only (<18 yrs)

4. Living liver donor transplants in the UK
Paediatric recipients only (<18 yrs)

5. Transplant waiting lists

6. Paediatric patients (<18 yrs) on active transplant list at 9 July 2015
KIDNEY

7. Paediatric patients (<18 yrs) died / removed from the transplant list
KIDNEY

8. Paediatric patients (<18 yrs) on active transplant list at 9 July 2015
HEART

9. Paediatric patients (<18 yrs) died / removed from the transplant list
HEART

10. Paediatric patients (<18 yrs) on active transplant list at 9 July 2015
LUNG

11. Paediatric patients (<18 yrs) died / removed from the transplant list
LUNG

12. Paediatric patients (<18 yrs) on active transplant list at 9 July 2015
LIVER

13. Paediatric patients (<18 yrs) died / removed from the transplant list
LIVER

14. Paediatric patients (<18 yrs) on active transplant list at 9 July 2015
SMALL BOWEL

15. Paediatric patients (<18 yrs) died / removed from the transplant list
SMALL BOWEL

16. Actual organ donors

17. Deceased paediatric donors (<18 yrs),
by donor type

18. UK deceased donors compared with imported deceased donors
Paediatric only (<18 yrs)

19. Deceased paediatric donors (<2 yrs), by donor type
5 years: 1 April 2010 – 31 March 2015
Number

20. Potential organ donors

21. Information for this section is obtained from the Potential Donor Audit (PDA)
There are some limitations with PDA data when examining data for neonates. BSD testing was not possible/not generally performed in patients under the age of 2 months prior to 1 April 2015 therefore the numbers presented are very low for the DBD pathway in patients under 2 months

22. Number of paediatrics (<2 yrs) at each stage of DBD donation process
5 years: 1 April 2010 – 31 March 2015
Number

23. Number of paediatrics (<2 yrs) at each stage of DBD donation process, by year

24. Number of paediatrics (<2 yrs) at each stage of DBD donation process, by age group
5 years: 1 April 2010 – 31 March 2015

25. Number of paediatrics (<2 yrs) at each stage of DCD donation process
5 years: 1 April 2010 – 31 March 2015

26. Number of paediatrics (<2 yrs) at each stage of DCD donation process, by year

27. Number of paediatrics (<2 yrs) at each stage of DCD donation process, by age group
5 years: 1 April 2010 – 31 March 2015

28. Reasons for lack of family approach and for family refusal

29. Reasons for families of eligible DBD donors not being approached
5 years: 1 April 2010 – 31 March 2015
 Age group
< 2 months
2-6 months
6-12 months
12-24 months
Total
Coroner/Procurator Fiscal refused permission 7 5 19
Other 1 3
Family considered too upset to approach 2
Not identified as a potential donor / organ donation not considered
Other medical reason
Patient's general medical condition 10 8 11 29
Coroner refusals due to non-accidental deaths and police investigations, and social services involvement.
Text stated under ‘other’ text for 5 cases includes information regarding police investigations and legal objections

30. Reasons for families of eligible DCD donors not being approached
5 years: 1 April 2010 – 31 March 2015
Age group
<1 month
1-2 months
2-6 months
6-12 months
12-24 months
Total
Not identified as a potential donor / organ donation not considered 15 19 16 18 84
Patient outside age criteria 28 26 21 1 77
Other 13 14 11 69
Patient's general medical condition 9 4 7 42
Coroner/Procurator Fiscal refused permission 5 3
Other medical reason 2
Family considered too upset to approach 6
Family stated that they would not consent/authorise before they were formally approached
Resource failure 76 75 74 41 47
313
Coroner refusals due to need to examine all organs for PM, social services/police involvement, some CODs not explained
Text stated under ‘other’ text includes information regarding donors being too young for DCD donation (local criteria quoted as 6 months up), too small, police investigations, and no suitable recipients

31. Reasons for family consent/authorisation not given for DBD donation
5 years: 1 April 2010 – 31 March 2015
Age group
< 2 months
2-6 months
6-12 months
12-24 months
Total
Strong refusal - probing not appropriate 2 6
Family felt the body needs to be buried whole (unrelated to religious or cultural reasons) 1 3 5
Family did not want surgery to the body
Other
Family felt it was against their religious/cultural beliefs
Family wanted to stay with the patient after death
Family felt the length of time for donation process was too long 10 9 22
Text stated under ‘other’ text for 3 cases includes no reason given by Consultant following their approach, and emotional reasons from family members

32. Reasons for family consent/authorisation not given for DCD donation
5 years: 1 April 2010 – 31 March 2015
Age group
<1 month
1-2 months
2-6 months
6-12 months
12-24 months
Total
Family felt the length of time for donation process was too long 5 1 4 2 9 21
Strong refusal - probing not appropriate 3 8 20
Other 6 14
Family did not want surgery to the body 10
Family wanted to stay with the patient after death
Family felt the patient had suffered enough
Family felt it was against their religious/cultural beliefs
Family felt the body needs to be buried whole (unrelated to religious or cultural reasons)
Family were divided over the decision
Family concerned that organs may not be transplanted
Family did not believe in donation 15 17 12 39 92
Text stated under ‘other’ text for 14 cases includes emotional reasons from family, child’s size, and contesting of medical decision RE WLST leading to a court case