1. Chromosome 18 Registry & Research Society
DID YOU KNOW

2. Did you know that it takes $500,000 a year to keep our Chr18 CRC open at the current level?

3. Did you know we have over 650 registered participants in our study?

4. Did you know that the Chr18 CRC has been operational for 26 years and is the only Chromosome 18 dedicated Research in the World?

5. Did you know the C18 CRC has a custom-designed microarray targeting chromosome 18 that can tell us someone’s genotype in two days?

6. Did you know that the Chr18 CRC has an extensive medication list database that includes side effects and effectiveness information? 

7. Did you know that the Chr18 CRC offers mail-out screening assessments for autism spectrum disorder/social skills, internalizing and externalizing behaviors, executive function and adaptive skills?

8. Did you know that Chr18 CRC wants milestone pictures of your child – birthdays, graduations, school pics, etc? Just think of us as that uncle and aunt you always send pics to!

9. Did you know we can store frozen cells for years in liquid nitrogen, which is -320°F?

10. Did you know we have new Management Guides for your child’s doctors on our website?

11. Did you know that the information from all of the participant’s medical records have been abstracted and are organized into a large searchable database?

12. Did you know that each year Dr
Did you know that each year Dr. Cody reviews extensively and updates all the genes on Chr18?

13. Did you know that members of the research team attend the family conference to (1) meet with families (2) enroll new families (3) provide on-site research opportunities to research study participants.

14. Did you know that cells need to be handled in a special sterile environment so that no contaminants interfere with their growth?

15. Did you know that we can isolate white blood cells from blood and treat them so that they’ll grow for years in the lab?

16. Did you know that in one hour we can isolate DNA from 1 teaspoon of blood?

17. Did you know that you can go to the CRC website and look up your chromosome 18 genes of interest and learn what conditions they can cause?

18. Did you know that research participants can schedule a clinical visit through C18 CRC for evaluation with experts that are familiar with the chromosome 18 conditions?

19. Did you know that all of our participant’s medical records have been scanned and are stored in a secure server?

20. Did you know that the Chr18 CRC collaborators with scientific experts on specific chromosome 18 genes are from around the world?

21. Did you know we now offer on-line CME credit for medical doctors about chromosome 18 abnormalities?

22. Did you know we have over 50 peer-reviewed scientific publications about chromosome 18 abnormalities?

23. Did you know that over 95% of our funding comes from the Chr18 Registry?

24. Did you know that the Chr18 CRC offers research opportunities at the year Chr 18 Registry conference (for research participants – which you can become at the conference…contact Annice for details)?

25. Did you know that the genetic counselor is available to review your child's chromosome report with you?

26. Did you know that you can visit the Chr18 CRC on the second Thursday of every month at 11:30 AM?

27. Did you know that 0.2% of all the people in the world with a non-trisomy chromosome 18 condition are enrolled in the Chr18 CRC?