1. Best Practice – Patient Experience Presented by Angela Metcalf
NHS England – 29 Nov 2013

2. FFT – Accessibility for All Workstream
There are individuals who face particular challenges with regards to the opportunity of responding to the Friends and Family question. These were identified as:
Children & Young People
Learning Disabilities/Cognitive Impairment
End of life, Neonatal Death & Stillbirth
Dementia
Equality & Diversity (sight & hearing impairment, language & literacy issues)
Health & Justice and Military Health
NHS | Presentation to Best Practice Network – 29th November 2013

3. Approach Sourced existing guidance Linked with Patient Experience
colleagues at Thames Valley Area Team
Sourced easy read Friends and Family
Test/Patient Experience feedback forms
NHS | Presentation to Best Practice Network – 29th November 2013

4. NHS | Presentation to Best Practice Network – 29th November 2013

5. Gloucestershire Voices
BGSW Area Team engaged with Gloucestershire Voices who are set up to speak on behalf of the wider group of people with learning disabilities
Knowing the importance of engaging with patients… we wanted to involve people with learning disabilities from very early on in the work we were doing
Would have been difficult to have had a blank sheet to start with, so it was useful to build upon the good work that had already been done
Gave Gloucestershire Voices the documents beforehand so that they could prepare
Set out the process in very clear steps
Set the scene
Facilitated small groups (keeping people on track, role play)
1.5 hours
Fun, not scary and very useful!
Pulled information together afterwards
We wanted to make it real… not tokenism!
NHS | Presentation to Best Practice Network – 29th November 2013

6. Documentation
Cherry picked best bits and created a draft Easy Read FFT, Patient Guide and NHS Staff Guide
NHS | Presentation to Best Practice Network – 29th November 2013

7. My Life, My Choice
Thames Valley Area Team engaged with My Life, My Choice - a self-advocacy organisation run by and for people with learning difficulties in Oxfordshire
Repeated the process with the experts by experience
NHS | Presentation to Best Practice Network – 29th November 2013

8. Approach
We amended the documentation and then worked with speech and language therapists, clinicians etc. to ask for their feedback and to validate what we had learnt
Then we widened the feedback to staff, champions, experts that work with people with learning disabilities for their feedback
Thames Valley AT & BGSW AT collated the work together and produced final draft versions of all of the documents
These documents along with the guidance and an evidence based report will be presented at a round table event so that this can be tested with early adopter sites in the new year
NHS | Presentation to Best Practice Network – 29th November 2013

9. NHS | Presentation to Best Practice Network – 29th November 2013