1. Workshop Title From Apart to A Part
Facilitating Community Engagement as a Self-Directed Outcome
Joseph S. Grabowski, QDDP, BS

2. Who are you? What is your role? What makes YOUR life good?
Introductions
Who are you? What is your role? What makes YOUR life good?

3. Why this Presentation Matters
We can embody the philosophy and values 
We can empower the people we serve
We can educate our support staff
But how do we engage the community?
This Photo by Unknown Author is licensed under CC BY-SA-NC

4. Learning Outcomes
By the end of the session, participants will be able to:  
identify societal barriers to inclusion, and how to recognize "institutional thinking" 
connect core person-centered values and philosophies to existing societal norms 
become liaisons between people and their communities through universal relationship building strategies

5. From Apart …
Rick & Rene’s stories, part 1 – Institutional Living

6. Overview

7. Inclusion

8. This Photo by Unknown Author is licensed under CC BY-NC-ND
Exclusion
Illustration: First day at new job / school / community
This Photo by Unknown Author is licensed under CC BY-NC-ND

9. From Exclusion to Inclusion

10. Full Inclusion

11. Inclusion and Diversity

12. Barriers to Inclusion

13. Traditional Barriers
Money Transportation Support Communication Accessibility Fear of the unknown Ignorance

14. Societal/System Barriers
Ignorance Unclear boundaries Confidentiality concerns Funding Staffing Liability “Institutional Thinking”
This Photo by Unknown Author is licensed under CC BY-NC
This Photo by Unknown Author is licensed under CC BY-SA-NC

15. Institutional Thinking
What are some types of modern-day institutions?

16. “Institutional Qualities”
SETTINGS THAT HAVE THE EFFECT OF ISOLATING INDIVIDUALS RECEIVING HCBS FROM THE BROADER COMMUNITY The final rule identifies settings that are presumed to have institutional qualities and do not meet the rule’s requirements for home and community-based settings. These settings include those in a publicly or privately-owned facility that provide inpatient treatment; on the grounds of, or immediately adjacent to, a public institution; or that have the effect of isolating individuals receiving Medicaid-funded HCBS from the broader community of individuals not receiving Medicaid-funded HCBS.

17. “Institutional Qualities”
Settings that have the following two characteristics alone might, but will not necessarily, meet the criteria for having the effect of isolating individuals:
The setting is designed specifically for people with disabilities, and often even for people with a certain type of disability.
The individuals in the setting are primarily or exclusively people with disabilities and on-site staff provides many services to them.

18. “Institutional Qualities”
Settings that isolate people receiving HCBS from the broader community may have any of the following characteristics:
The setting is designed to provide people with disabilities multiple types of services and activities on-site, including housing, day services, medical, behavioral and therapeutic services, and/or social and recreational activities.
People in the setting have limited, if any, interaction with the broader community.

19. Connecting Values

20. Core Values
Person-centered Self-advocacy Self-determination​ Least restrictive environment​ Clients rights​ Balancing choice and safety​ Dignity of risk Supported Decision Making

21. Social Norms
Unwritten rules of behavior Unspoken expectations Manners Law Conformity The culture

22. … to a Part …
Rick & Rene, part 2

23. The Language of Behavior

24. Maslow’s Hierarchy of Needs
Truman Show, part 2 – Escape from the Island
This Photo by Unknown Author is licensed under CC BY

25. Belonging to a small-scale social group​
The Good Things of Life
Family​
A place to call home​
Belonging to a small-scale social group​
Friends​
A belief system​
Meaningful work​
Safety and security ​

26. The Good Things of Life
Opportunities to discover and develop one's abilities, skills, and talents.
To be viewed as human and treated with respect.​
To be dealt with honestly.​
To be treated fairly.​
Being treated as an individual.​
Having a say in important decisions affecting one's own life.​ ​

27. The Good Things of Life Access to the community.​
Access to everyday activities.​
Being able to contribute and have one’s contributions recognized as valuable.​
Good health.
Wolfensberger, Thomas & Caruso (1996) ​

28. This Photo by Unknown Author is licensed under CC BY-SA
Locus of Control
Truman Show, part 2 – Escape from the Island
This Photo by Unknown Author is licensed under CC BY-SA

29. Self-Directed Outcomes
Come from internal motives, hopes, dreams; the pursuit of “The Good Things of Life” Individual sees the value and benefits of moving in the direction of his/her dreams Choice - exercising self-determination based on personal preference

30. Let’s Talk!

31. Rights Responsibilities Respect Reciprocity Relationships
The “R” Words
Rights Responsibilities Respect Reciprocity Relationships
Person-centered team discussion and consensus – proactive rather than reactive

32. The “R” Words
RISK!
* To individual / * To agency

33. Community Liaisons

34. Liaison (n)
a "go-between"; "a person who helps organizations or groups to work together and provide information to each other"
Depends on community's reception
Depends on individual's interest and internal values
Be prepared to fade back paid supports as natural supports are established and natural resources are utilized
This Photo by Unknown Author is licensed under CC BY-SA-NC

35. Building Relationships
What makes up a community?
Physical proximity
Shared interest
Shared experiences
Shared beliefs/values
Common goals

36. Traditional Community Supports
INDIVIDUAL
PAID SUPPORTS

37. Invisible Community Supports
INDIVIDUAL
PAID SUPPORTS

38. Fading Paid Community Supports
INDIVIDUAL
PAID SUPPORTS
Community Supports Paradigm Shift – see support role not as a program, but as a vehicle

39. Facilitating Community Engagement

40. "Key Components to Support System Transformation"
3. Connect with the Community in Resourceful Ways (
Providers are in a unique position to make community connections. States should encourage providers to:
Build relationships with local businesses to create and reinforce inclusion on all fronts: social, recreational, employment
Link a participant’s unique interests with potential community connections; use these connections to inform choice
… assist providers to figure out methods for productive community outreach and to create avenues of communication with the community and its resources
Break down discrimination and other barriers to inclusion through community education

41. "Key Components to Support System Transformation"
6. Train, Train, and Then Train Some More
Build a common understanding of the values, principles and requirements underlying system change
Assess competencies of stakeholders, providers, participants and design focused training strategies to include:
The federal regulations
Person-centered thinking, planning and practice
Barriers and how to overcome them
Community resource mapping to support community inclusion
Accessing public transportation

42. Set the Example
We want the people we support to be invited into the life of the community…
We should lead the charge by inviting the community in as stakeholders and peers in the lives of ALL its citizens.
This Photo by Unknown Author is licensed under CC BY-NC

43. Contact Information
Joseph Grabowski
(802)
uvs-vt.org / Upper Valley Services