1. A New Approach: Making 2019 A Muscle Walk Knockout
Corporate Chair and Honorees
November 26, 2018

2. Muscle Walk Team Scott Van Zile Program Support Coordinator
Milwaukee, WI
Brittany Fornengo
National Director
Minneapolis, MN
Lisa Lodde
NVP Community Engagement
Milwaukee, WI

3. Success From Your Peers
Derek Harrigan
Development Specialist
Cedar Rapids, IA
Sarah Coleman
Executive Director
Chicago, IL

4. Housekeeping All phone lines are muted
If you have a question please use the chat box and we will try to answer questions as we go but will also give you the chance to ask at the end.
If we don’t have time to get all of your questions answered, we will send out a FAQ sheet following the WebEx.
This WebEx is being recorded and will be posted to the MW Resource Center by the end of the week.

5. What is your favorite part of Muscle Walk or what is one thing you are looking forward to the most if this will be your first Muscle Walk? Submit your answers in the chat feature.

6. 2018 and 2019 Goals Projecting to finish 2018 at $6 Million
2019 business plans are to raise an additional $650,000 YOY

7. The Power of Our Families
Only 3% of MDA families participate in the MW program
MDA has over 100,000 registered patients
The average newly diagnosed family raises $3,600
25% of MDA families are newly diagnosed each year
The average MDA family (not newly diagnosed) raises $1,600
80% of money raised is done by the top 15 teams
The average Muscle Walk donation is $74…ten donors = $740

8. MDA Family Contact Has To Be #1
Work as one MDA Team in your District office!
Work with the CCS to make sure that they are DISTRIBUTING Muscle Walk information and TALKING about the Muscle Walk at the Care Centers and anywhere else they are coming in contact with MDA families.
Discuss updates and status of your Muscle Walk and MDA family component at your District’s weekly team meeting
After a Care Center day, touch base with the CCS for to see what comments and referrals they are able to give you - especially newly diagnosed
Use the MDAsecure lists that are sent to you, ED and RD as soon as you receive them – make calls to MDA families each and every day. Sometimes you will have to call in the evening or on the weekends to reach an MDA family

9. Important MDAsecure Family Lists

10. 2019 Muscle Walk Priorities
Make Muscle Walk a PRIORITY
For the event lead and for the entire District office
Muscle Walk is a year-round campaign
Engage and invite more families to join the biggest MDA reunion
MW is MDA’s signature program for MDA families – let’s make it great!
We can’t be afraid to ask our families to raise money for MDA
Grow support by engaging more companies through sponsorship and teams
Think outside of the box and incorporate the new things you will hear on today’s WebEx
For the MW program to grow we need to embrace new approaches and make them work

11. Knocking Out Your Muscle Walk Recruiting A Corporate Chair

12. Corporate Chair – Why? Why have a corporate chair? Top executive
New aspect/direction
More people involved
More money for MDA
Top executive
Someone with a wide network
Lots of contacts and vendors
Willing to ask for support on behalf of the MDA Muscle Walk
Someone who sets a goal of raising 20% of your overall Muscle Walk income

13. Corporate Chair- How? Company sponsorship Internal teams/fundraising
Creating an Executive Committee
A group of 5-7 people that the Corporate Chair identifies within their network to assist in raising the 20% of overall income. (new money)
Hosting a Corporate Breakfast
Morning meeting inviting network to learn more about MDA and asking for their support.
25-30 community leaders in attendance (depending on market)
How does this breakfast get paid for???
Host at Corporate Chair’s company
Get food/location donated

15. Where do you find your Corporate Chair?
Current sponsors or past sponsors
Family connections to high level executives at a company
Top company teams involved with Muscle Walk
Use LinkedIn to see who our families and current sponsors are connected to
Discuss during your weekly District Team meetings
Make sure to include your District Care Team

16. Corporate Chair Resources

17. Medical Honoree
The face of the event representing the medical community. This can be a neuromuscular doctor, physical therapist, dentist, eye doctor, etc.
Sets goal of raising $10,000/$5,000 ($10,000 for events with participants and $5,000 for under 500 participants)
Company sponsorship
Company teams/fundraising
Getting referral facilities involved by sponsoring/creating teams
Patient mailing
Social media

18. Where do you find your Medical Honoree?
MDA Care Centers
Ask your families to nominate someone who should be recognized
Ask the leaders of your MDA Care Centers who should be honored
Is there someone from a DME vendor, etc. that could be asked
Medical staff at Summer Camp

19. Medical Honoree Resources

20. Youth/Adult Honoree
Patient to honor at the event and share their story throughout the Muscle Walk season
Commits to raising funds and sharing their story by
Starting a team with a fundraising goal of $5,000 for events with participants and $2,500 for under 500 participants.
Shares story to be used in , day of event and put on event website
Go to when looking for stories to highlight during Muscle Walk season
Staff gives extra support to ensure goal is met and family is recognized properly

21. Where do you find your honorees?
Top Muscle Walk teams
Send an asking for people to submit recommendations to be the honoree
Current participants who go above and beyond
Brainstorm at your weekly District office Team meeting
Summer Camp

22. Resources for Adult/Youth Honoree

23. Resources available on the MW Resource Center now!
Corporate Chair
Description of roles
Timeline
Sample ask for Executive Committee members
Medical Honoree
Description of role
Revenue stream breakdown
Adult/Youth Honoree
Sample timeline

24. Next Steps
Make a prospect list of 5 people for your Corporate Chair, Medical Honoree and adult/youth honoree each.
Discuss these lists at your weekly district meetings if you come up short.
Schedule meeting with your ED to discuss prospects and add additional if needed.
Reach out to all of your prospects before the end of the year to schedule a meeting to make the ask. Invite your ED to attend this meeting with you.

25. Please type them into the chat box
Questions
Please type them into the chat box

26. Monday, December 3 hear how you’ll activate your Volunteer Committee
Thank You