1. #EOLC2018

2. Early 2015 Informal discussions:
Annette Fleming, CEO, Aquarius
Palliative care social worker
Wider discussions with service providers in substance use and end of life care services and community partner, Voicebox Inc.
Overwhelming support for project
Discussion with Big Lottery Fund
Successful bid by end of 2015

3. Key Questions Exploratory research project:
What does the existing international research and wider literature tell us about current responses to end of life care for people with substance problems?
What practice or care pathways already exist to support adults with substance problems needing end of life care, and the families/carers of these people? What facilitators and barriers to end of life care are experienced by individuals and their families?
How many people with substance related chronic or terminal illness are receiving, or in need of, end of life care in the UK?

4. Key Questions (cont.)
How do people with substance problems, past or present, experience end of life care?
How do family members, friends and carers (FMFCs), experience the care and support provided to their loved one? To what extent have services been responsive to FMFCs own support needs?
What are the challenges and opportunities professionals face supporting people with substance problems and chronic or terminal illness?

5. December 2018 ‘End’ of research project…. Incredible learning process
14 reports
2 digital resource collections
Project website
Set up an online Community of Practice
New policy-focussed project (with Mersey Care NHS Trust)
Meeting with politicians, policy makers and other academics.
New relationships with agencies – statutory and voluntary.

6. Across academic disciplines Practice and community partners
Collaboration
Across academic disciplines
Practice and community partners
Project Advisory Groups
PWE group (PWEAG)
National group
People (both in, and outside of, services) who spoke to us