1. Summary of findings – stocktake of post-diagnosis support across Y&H
Penny Kirk

2. Aims
Provide a tool to help commissioners stocktake current provision of post-diagnostic support, identifying areas where there is still work to do
Identify common issues/gaps across Y&H to inform work programme
Identify examples of good practice for sharing

3. Limitations
Questionnaire based loosely on DH survey of post-diagnostic support circulated in 2013
Commissioner only view – providers, service users and carers may have a different perspective
Asked about availability, rather than uptake or awareness
Rating scale (Ahead of the curve, work in progress, work yet to start, not planning to do) is subjective and intention was not to use to ‘rank’ areas by their progress

4. Responses There has been a return from 19 out of 22 CCG areas
Returns were completed by a mix of CCG and LA commissioners. Some had input from 3rd sector and memory service providers
Assumption that no response indicates there is work to do
Collated responses used as an overall marker of progress across the patch and to identify where we are likely to find good practice examples
Responses shown as % of respondents who selected each response

5. Categories within PDS grid
Access to information
Choice and Person-centred care
Future Care Planning
Service Planning & Development

6. Access to information
Patients and carers are actively informed about support available
Online information available

7. Access to information Written information provided
Named key-worker/case
manager
Publically available PDS
pathway

8. Choice and person-centred care
Access to both individual
and group support options
Access to peer support
Support for carers

9. Choice and person-centred care
Support to manage
BPSD*
Support for younger people
Access to psychotherapy e.g. CST*
Support tailored to the individual
Support for people with MCI
* No areas rated themselves as ahead of the curve

10. Planning for future
Future decision making/ future care

11. Service planning & development
Service user and carer involvement/engagement
(4 areas ahead, 1 yet to start)
Monitoring / evaluation
of service impact*
Representation of
minority groups
within services

12. Findings Appears to be wide variation in current support offer
Great potential for rapid improvement by sharing learning and resources across the patch, using and strengthening existing community of practice
Lots of examples of innovative practice – many areas still working on how to evaluate impact, risk that innovation gets ‘lost’

13. Next steps
Support sharing of practice, lessons learned, resources –focus on those areas where most work to do
Contact other SCNs re work happening elsewhere
Triangulate data from Sheffield study (Memory services)
Offer from York Uni to attend next RDL meeting to discuss service evaluation and measuring impact on outcomes
DH expected to run an updated survey later this year
How to ensure service users and family carers have ongoing opportunity to give their views & influence PDS provision

14. SCN Update

15. National review Review of SCNs, AHSNs, LA and NHSIQ is ongoing
Coherent strategy for leadership development and improvement capability
Aligned and developed in parallel
Focus on delivery of 5YFV
NHSIQ will cease to operate
AHSNs will coordinate local improvement activity

16. Initial Recommendation 8
Establish a central ‘One stop shop’
Provide access to shared improvement resources – common requirements, e.g:
Research and evaluation advice
Spreading learning and best practice
Connecting people across systems
Access to improvement tools, on-line development (e.g. MOOC)
Name, hosting and funding arrangements to be determined in stage 2

17. Initial Recommendation 11
Clinical Senates, Strategic Clinical Networks (SCNs) and AHSNs should continue
Have an important role to play in supporting change across health and care system
However, changes needed to:
Clarify roles
Strengthen accountability and governance
Ensure relevance to local and national priorities
Secure appropriate alignment between bodies

18. Role of Strategic Clinical Networks
Continue to be SCNs in four current priority areas
Should be renamed Clinical Networks
Could form new networks to support local priorities
Role: Support health systems to improve health outcomes of their local communities by connecting commissioners, providers, professionals, patients and the public across a pathway of care to share best practice and innovation, measure and benchmark quality and outcomes, and drive improvement

19. AHSNs and Clinical Networks
Should be streamlined
Alignment of business plans
Operate as single support entity for their member commissioners, providers and professionals
(further discussion and development to take place in Stage 2)

20. SCN Update Work programme has been updated following last RDL meeting
Will be circulated for comment / feedback
Focus on achieving and maintaining 67% will continue

24. Implications of population base change

25. QOF and DES resources
Webinar Friday 15th May, 11.30am – joining details in April bulletin
Sign up to primary care dementia resources varies
Comprehensive QOF template now available
DES search being developed for new requirements
Year of Care version of QOF template on its way
15/04/2019

26. NHS Airedale, Wharfedale and Craven2
NHS Barnsley
NHS Bassetlaw
NHS Bradford City
NHS Bradford Districts 4
NHS Calderdale
NHS Doncaster
NHS East Riding of Yorkshire 5
NHS Greater Huddersfield
NHS Hambleton, Richmondshire and Whitby 3
NHS Harrogate and Rural District
NHS Hull
NHS Leeds North
NHS Leeds South and East 1
NHS Leeds West
NHS North East Lincolnshire
NHS North Kirklees
NHS North Lincolnshire
NHS Rotherham
NHS Scarborough and Ryedale
NHS Sheffield 13
NHS Vale of York
NHS Wakefield

27. Other work Joining up care plans
Symptom Management guidelines – last year of life
GP mentors
CANTABmobile report
Quality Improvement Awards
Sharing Good practice event – 25th June
MAS event being planned – commissioner invite