1. Registri sul tumore della prostata: esperienze internazionali
Stefania Maggi
CNR Istituto di Neuroscienze
Invecchiamento-Padova

2. Just collect the data !!!
We SHOULD be moving away from this.

3. This is not “Better”

4. Registries: Application
Long-term outcomes
Rare diseases
Potential confounders important
Multiple objectives (clinical course of the disease, treatment pattern, health care utilization, frequency of adverse events)

5. Examples
THE VICTORIAN PROSTATE CANCER REGISTRY established in 2009

7. Clinical registers are databases that systematically collect health-related information on individuals who are:
treated with a particular surgical procedure, device or drug, e.g. joint replacement;
diagnosed with a particular illness, e.g. stroke; or
managed via a specific healthcare resource, e.g. treated in an intensive care unit.
Clinical quality registers are a particular subset of clinical registers. The purpose of a clinical quality register is to improve the safety or quality of health care provided to patients by collecting key clinical information from individual healthcare encounters which enable risk-adjusted outcomes to be used to drive quality improvement.

12. Prostate cancer quality registry. Goals