1. Family Pattern and Issues Abdul Aziz Ch Certified Success Coach Certified Youth Trainer Certified Wellness Coach Special Educationist 03459124990

2. CONTENTS DEFINITIONS CHALLENGED FAMILY CHALLENGED CHILDREN PSYCHO-SOCIAL PROBLEMS PSYCHO-SOCIAL PROBLEMS FACED BY PARENTS OF CHALLENGED SIBLINGS OF CHALLENGED RIGHTS OF CHALLENGED CHILD & FAMILY COPING RESPONSES BY PARENTS SIBLINGS COPING STATEGIES PARENTS PROFESSIONALS COMMUNITY CONCLUSION

3. CHALLENGED FAMILY Challenged families are the ones having challenged children either physically or mentally or both.

4. CHALLENGED CHILDREN The child who is mentally challenged or he may have any learning disability associated with physical impairment. They are often called as ―Special child ‖ thus having special needs of personal attention to attain their fullest potential.

5. PSYCHO-SOCIAL PROBLEMS Psycho-social relates to one's psychological development in, and interaction with, a social environment. Problems that occur in one's psychosocial functioning can be referred to as "psycho-social dysfunction”.

6. PROBLEMS FACED BY CHALLENGED PARENTS Parents Parents the legal guardian of a challenged child face a great deal of problems while bringing up their children.

7. PROBLEMS FACED BY PARENTS

8. EMOTIONAL ISSUES

9. Loss of Self-esteem Our society tends to foster the concept that children are extensions of their parents and reflect on their parents. Life goals may be radically altered when it becomes obvious that one's child will be perceived as a "loser" rather than a "winner."

10. Shame Parents may anticipate Social Rejection, pity and related loss of prestige. These expectations are all too often quite realistic.

11. GUILT They often struggle with guilt as if they somehow caused the child to be disabled.

12. Depression Typically, parents are disappointed in their child and realistically concerned about his future. To some, mental retardation symbolizes the death of the child and hence precipitates the type of grief reaction associated with the loss of a loved one.

13. STRESS Due to the many responsibilities & burden of coping with a disable child they experience a lot of stress.

14. DISAPPOINTMENT Parents hold high hopes when the child is born and when disability diagnosed, feels disappointed that their goal won‘t be possible.

15. EMBARRASSMENT Parents feel embarrassed that their child is not mentally or physically stable.

16. BY PARENTS Strive for different diagnosis, i.e. frequent visits to health professionals. They want their children to see at minimum scale of disability. Some become very much Psychologically stressed and go for spiritual treatments. After acceptance of a disability of child, they seek to learn more and more about that disability. Search for health care professionals to improve child‘s health status. Educated ones attend seminars and workshops to learn coping strategies.

17. LOSS OF SOCIAL RELATIONS They become socially very isolated.

18. Self-sacrifice Some parents dedicate themselves entirely to the retarded child, make great personal sacrifices. Family disturbance, including neglect of other children and marital conflicts, may go together with this pattern.

19. Defensiveness Parents may become hypersensitive to perceived criticism of their retarded child and respond with anger. In extreme cases they may deny the existence of retardation, rationalize the child's shortcomings, and seek professional opinions to confirm their own conviction that "there is really nothing wrong" with him.

20. PHYSICAL ISSUES Tiredness Close medical monitoring Avoid self harm

21. MONITOR BEHAVIOUR Parents might have to keep a close eye and monitor the child‘s behavior at school in order to ensure that he or she is not being bullied at.

22. EDUCATIONAL ISSUES

23. SEARCHING FOR EDUCATION Parents usually have to search for private education or an satisfactory public education which provides all the needs.

24. TRANSPORTATION Transportation to and from the school might be an issue, hence, home schooling a better option.

25. FINANCIAL ISSUES Care giving expenses Private education Professional help

26. PROBLEMS FACED BY SIBLINGS Experience of disturbance Lack of parental attention Adverse emotional problems Feelings of unequal consideration Feelings of insecurity Loss of property Low Self esteem Fear of having same type of children

27. RIGHTS OF CHALLENGED Right to be treated with dignity Right to education Right to confidentiality Right to vocational rehabilitation Right to social support Right to transportation Right to refuse treatment while in residential care Right to privacy

28. Right to be treated with dignity Right to be treated with dignity These individuals may not be neglected, verbally harassed, or physically abused in any setting.

29. Right to confidentiality They must be aware of and agree to the distribution personnel records. They must also have access to records.

30. Right to education Education must include necessary related services and an individualized education program.

31. Right to social support These individuals are eligible to receive Supplemental Security Income, Medicare, and Medicaid.

32. Right to vocational rehabilitation Vocational rehabilitation services include: Vocational evaluation Career guidance Employment counseling Medical and psychiatric care Vocational training etc.

33. COPING RESPONSES

34. THINKING WORK STRATEGY 1. Separating disability from a child. 2. Thinking positively. Parents made an effort to think positively about their own coping abilities. 3. Maintaining a helpful focus. 4. Keeping expectations realistic.

35. CAPACITY WORK STRATEGY Managing other activities. Skill learning. Working together. Using social support.

36. Parents of Children with Disabilities Chronic sadness/grief/sense of loss. The challenges of parenting cause parents to neglect their own wellbeing Running out of physical and psychological energy Finding adequate child care for children with special needs Managing complex medical and developmental demands (for example, doctor appointments, therapies, treatments Developing and managing special education plans for child Giving enough time and attention to manage other relationships, including spouse/partner, other children, friendships Confusion about how much to expect/push achievement for child

37. Parents Of Children With Disabilities Accept grief and loss, don’t deny it Prioritize self-care Monitor physical and psychological well-being and adjust schedule accordingly Talk with child care provider about possible child care issues and make sure they will support your child’s special needs Have back-up childcare plans (Plan B, Plan C, Plan D) Organize, prioritize and schedule treatment for child. May mean delaying some treatment Use special education advocate and set up ongoing communication plan with school Build in dedicated time for relationships that support caregiver Seek out other parents of children with similar disabilities (online is good source) Research current information about your child’s disability