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EUROPEAN NETWORK ON INDEPENDENT LIVING
Presentation of ENIL - EDF collection of examples that facilitate access to Independent Living Ines Bulic Cojocariu European Network on Independent Living – ENIL
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EUROPEAN NETWORK ON INDEPENDENT LIVING
Key facts Includes examples from 10 countries, collected through a survey in 2017 Examples that to a different extent facilitate the right to independent living Examples, as opposed to practices Analysed from the perspective of Article 19 CRPD – contribution & limitations
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EUROPEAN NETWORK ON INDEPENDENT LIVING
Article 19 CRPD
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Definition of Independent Living
EUROPEAN NETWORK ON INDEPENDENT LIVING Definition of Independent Living “IL is having the same range of options and same degree of self-determination that people without a disability take for granted.” (A. Ratzka) “IL/Living independently means that individuals with disabilities are provided with all necessary means enabling them to exercise choice and control over their lives and make all decisions concerning their lives” (General Comment No 5 on Article 19 CRPD)
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EUROPEAN NETWORK ON INDEPENDENT LIVING
Key principles Refers to ALL disabled persons Choice: not limited to the place of residence, but includes all aspects of a person’s living arrangements, incl. lifestyle Rights-based approach: IL as a right, instead of medical, social or charity care; right to choose services and service providers, with the aim to realise full inclusion within the community Mainstreaming: no IL if housing is only provided in specifically designed areas, with disabled people living in the same building, complex or neighbourhood
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EUROPEAN NETWORK ON INDEPENDENT LIVING
Overview of examples Legislation and funding State funded peer-counselling (Estonia) Direct payments (Ireland)
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EUROPEAN NETWORK ON INDEPENDENT LIVING
Overview of examples Community-based support Peer-counselling for women with disabilities (Austria) Supported living for people with intellectual disabilities (Croatia) Supported decision-making (Czech Republic) Mobile mental health units (Greece) Personal assistance for people with complex support needs (Sweden)
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EUROPEAN NETWORK ON INDEPENDENT LIVING
Overview of examples Involvement of disabled people Co-production in social care (UK) Participation of DPOs (Italy) Self-advocacy Self-advocacy of disabled people (Romania)
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EUROPEAN NETWORK ON INDEPENDENT LIVING
More examples? ENIL-ECCL Deinstitutionalisation Webinars ENIL-ECCL Interviews (coming in 2019)
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EUROPEAN NETWORK ON INDEPENDENT LIVING
Resources Authoritative guidance on Article 19 CRPD General comment No 5 on living independently and being included in the community ENIL Global report on IL ENIL Myth Buster on Independent Living ENIL Video Learning from the Swedish Experience Fact sheets
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Thank you! ines.bulic@enil.eu www.enil.eu
ENIL Brussels Office Mundo J, Rue de l’Industrie 10, 1000 Brussels, Belgium Tel: 0032 (0)
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