1. Yorkshire & Humber Muscle Group
Let’s finish what
we started
Yorkshire & Humber Muscle Group
Robert Meadowcroft
22 June 2018

2. The journey so far… Impact of Muscular Dystrophy UK
Progress from 2006 to 2018
Challenges today?
Opportunities in front of us

3. Income from charitable activities Donations, gifts & grants Legacies
Where are we today?
INCOME 2017/18
£000
Income from charitable activities
Donations, gifts & grants
Legacies
5,039
1,564
Income from other trading activities 88
Investment income
248
Other income
220
Total income
7,159
EXPENDITURE 2017/18
£000
Expenditure on raising funds
2,147
Costs from other Trading Activities 85
Sub total expenditure
2,232

4. CHARITABLE ACTIVITIES 2017/18 £000
Driving research and support
CHARITABLE ACTIVITIES 2017/18
£000
Medical research
3,775
Access to specialist care and support
1,184
Quality of life – independent living
1,106
Total charitable activities
6,065
EXPENDITURE 2017/18
£000
Sub total expenditure
2,232
Total charitable activities
6,065
Planned deficit for year
(1,191)
Total expenditure
7,106

5. Strategic investments

6. Improving NHS Care

7. Our impact with first new treatments
IVF mitochondrial donation
Translarna for eligible Duchenne boys
Spinraza for SMA Type 1

8. Priorities for 2019/2022
Research to accelerate the steps to treatments and cures
Improved care and support
Quality of life for independent living

9. Four strategic themes…
1. Fast track to treatments
2. Mental health matters
3. Use of technology
4. Sport, leisure and exercise

10. Key strengths Strong, committed and determined staff team
New CEO and Dr Kate Adcock, Director of Research, strengthening leadership team
Strong governance and very effective Trustees and committees
Networks - research, senior NHS staff, policy fields & in sport, biotech/pharma and business

11. The first and best choice for families
Accelerate progress
The first and best choice for families
Seen to lead the way in research, clinical trials, improving NHS care and support
Engage volunteers through stronger regional networks with digital support
Effective communications including redeveloped website and social media