1. Working with young people with HIV
David Cox
Health Adviser
Courtyard Clinic
St Georges London

2. Outline of presentation
Adolescent Transition Clinic
Young Adult Clinic
Discloser
Working in GU setting with few young people with HIV/AIDS
Way forward

3. Adolescent Transition Clinic
Service user consultation
Questionnaire & 1:1
After school clinic
Not in paediatric setting
Access to sexual health advice and screening
Food, magazines and music

4. Adolescent Transition Clinic
Started June 2005
Adult HIV/GUM Department
First Wednesday of every month
Clinic time 4–7pm

5. Team Paediatrician Adult HIV/GUM Physician Paediatric HIV Nurse
Adult HIV/GUM Nurse
Health Adviser
Specialist HIV Pharmacist

6. Service Users Cohort - 33 young people Age range 15yrs – 18yrs
All vertical transmission
Requirement - must know diagnosis

7. Issues Relationships Sexual health needs
Disclosure to friends and partners
Adherence
School, College and University
Careers advice

8. Future Plans Additional Nurse Led Clinic 1/12
Young Adult Clinic 18yrs to 24yrs
Support Worker – careers,housing,benefits
Age appropriate information booklets
Increase patient involvement PPE
Explore text service
More funding

9. Transition 10 young people transitioned Choice of centre
Summary of care
Medical
Psycho-social

10. Young Adult Clinic Started March 2009 Adult HIV/GUM Department
Second Wednesday of every month
Clinic Time 4–7pm
Vertical and Sexual transmission

11. Team Adult HIV/GUM Physician Adult HIV/GUM Nurse Health Adviser
Specialist HIV Pharmacist
Advice and support worker

12. Service Users 15 young adults Age range 18yrs – 25yrs
Vertical and sexual transmission

13. Disclosure ?

14. Issues for disclosure Accepted own HIV diagnosis
Support network established
Relationship has developed to a point of trust
Aware of possible negative responses

15. Issues for disclosure Time / Space / Place
Information on where and who to get support from
Clear and direct
Language
Access to immediate support if necessary

16. Issues for disclosure Develop closer friendships/relationships
Before/during sexual relationship
Own need
Unsafe sex/split condom/PEPSE

17. Issues of disclosure Impact on self Impact on others
Loss of confidentiality
Others who know diagnosis
Stigmatisation / Isolation
Loss of control

18. Working with young people with HIV……
Develop links with Paediatric Services
Address sexual transmission/safer sex
Check support services in your area and see if young adult friendly
See regularly and review
Ask for support from other centres

19. National Support Agencies
CHIVA
Body and Soul
National Children’s Bureau
Blue Sky Trust - Booklet