1. “EXPERIENCES OF PLWHA WITH HIV/AIDS CARE GIVERS IN THE CARIBBEAN” Suzette M. Moses-Burton HIV/AIDS Programme Manager, St. Maarten HIV/AIDS Activist First CHART Caribbean Conference on the Clinical Management of HIV/AIDS: A Multidisciplinary Team Approach Montego Bay, Jamaica, June 16-19, 2004

2. Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean
Question posed to PLWHA: What is your experience or that of your peers with Health Care Workers in your country?
JUNE 16-19, 2004
Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean

3. Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean
Observation made: Apparent discrepancies between actual service delivery/availability and perceptions of service availability by the consumer (plwha community)
JUNE 16-19, 2004
Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean

4. Rating Scale: 1 - Poor 2 - Fair 3 - Good 4 - Very Good 5 - Excellent
JUNE 16-19, 2004
Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean

5. Rating Scale: 1 - Poor 2 - Fair 3 - Good 4 - Very Good 5 - Excellent
JUNE 16-19, 2004
Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean

6. Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean
Country ratings: 1 (Poor) Antigua, DR, Suriname, Tobago 2 (Fair) Grenada 4 (Very Good) Aruba, St. Maarten 5 (Excellent) Bahamas, Bermuda, Barbados
JUNE 16-19, 2004
Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean

7. Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean
Main reasons for lower ratings: - inappropriate treatment of plwha by HCW - lack of adequate diagnostic testing facilities and other support services - improper management of plwha, particularly pregnant women - limited availability of ARV
JUNE 16-19, 2004
Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean

8. Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean
Experiences of plwha: Testing consentual and non-consentual Pre-test counselling none, some, excellent Post-test counselling none, some, excellent Availability of ARV not available, limited availability, available (free and at same cost of developed countries)
JUNE 16-19, 2004
Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean

9. Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean
Experiences of plwha: Diagnostic Testing not available, partially available (CD4 count only), available (directly or via local labs, which takes a long time) Hospitalisation poor due to various factors, good Psycho-social care/support limited, very good
JUNE 16-19, 2004
Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean

10. Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean
Other identified challenges faced by plwha: - High levels of stigma and discrimination among health care workers which affects the quality of health care provided, leading to segregation of HIV+ patients from others, labelling of utensils, washing of linens separately, fear of infection.
JUNE 16-19, 2004
Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean

11. Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean
Other identified challenges faced by plwha: - Unwillingness of plwha to seek health care services (when available) - Pregnant HIV+ women being advised to have abortions - Improper delivery of ARV (when available) leading to non-compliance
JUNE 16-19, 2004
Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean

12. Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean
Continuum of Care: - (VCT) Pre-test counselling & Post-test counselling - Psycho-social care/support (incl. nutritional counselling & alternative/complimentary therapies) - Treatment of OIs - Universal access to ARV - Diagnostic Testing including CD4 and viral load - PMTCT programme - Comprehensive Hospitalisation care
JUNE 16-19, 2004
Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean

13. Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean
YOU will all be held accountable for your lack of actions. Let future generations judge us not by what we did not do but by what we did, for we will be seen as wanting if we continue to allow millions to die needlessly.
JUNE 16-19, 2004
Experiences of PLWHA with HIV/AIDS Care Givers in the Caribbean