1. CF Family Advisory Council: A Partnership
Amy Baugh and Kirsten McGowan
Lead Parents
March 16, 2019

2. Our Mission
To work in partnership with the pediatric CF clinic care team to provide the highest quality of care and service to patients and families.
Who Are We
Team:
Carlos Milla, MD
Mary Helmers, RN, BSN PHN
Colleen Dunn, RRT, CCRC
Zoe Davies, PNP
Russell Wise, Pharm D
Candace Middleton, RTT
Teresa Priestley, SW
Cathy Hernandez
Julie Matel, MS, RD, CDE
Parents:
Amy Baugh
Kirsten McGowan
Arek Puzia
Rohini Thukral

3. Family Centered Care
Family Centered Care promotes partnerships between patients, families and healthcare providers to help navigate patient care
FCC Department at Stanford Children’s:
45 paid, trained parents
Provide family voice on policy, programs and clinical care
Advisory Councils
Committees
Process Improvement
Parent Acting
Parent Mentoring
Parent Presentations
Patient Safety

4. What We Do: Projects And Duties
Been in practice since 2003
Develop support materials: Transition guides, binder inserts, G-tube information, etc.
Enhance communication between Care Team and families
Serve as a voice for families receiving care at Stanford.
Website
CF Newsletter
Website Feedback:
Facebook (recipes weekly!)
Sit on hospital-wide FAC and Patient Safety committees to provide feedback that will impact CF patients/families
Newsletter

5. Current Projects Updating documents for the "Binder Project”
Transition Document
Providing feedback for the setup of the CF specialty pharmacy
Strengthen collaboration with Adult Advisory Council to promote transition success for teens/young adults
COME JOIN US! BECOME A PARENT ADVISOR! or

6. Thank You