1. for IV Congress of Polish Myeloma Patient Help Association
Multiple Myeloma Patient Support Group Activities and organization changes
20-22 February 2009, Olsztyn
for IV Congress of Polish Myeloma Patient Help Association

2. About us Founded in May 2006, self- dependent from March 2007
Regional groups: Brno,Praha,Plzeň, Hradec Králové, new from November 2008: Olomouc
170 members

3. General change group coordinator from August 2008
New function -
group coordinator from August 2008
professional worker - free of disease
any time available
without physical and psychical stress

4. What has improved
Continual, faster and easier interchange of information between regional groups
Cut-down of members (patients) paper work
Well-arranged and actual websites, wider content of patients´ journal
Regular leaflets with new information
Office with fixed working hours
More time spent with leaders of regional groups

5. What more we wish Increase the number of members
Reach out more patients with multiple myeloma (non-members)
Offer psychological and emotional support to the patients and their relatives
Get more partners for support of patients´ activities

6. Thank you for your attention