1. Palliative Care Co-Design Event!
Cultivating Change:
Co-Designing A Caregiver Friendly Hospital And Community
Palliative Care Co-Design Event!

2. Welcome and introduction Kate Wilkinson Vice President, Quality and Clinical Programs, Sinai Health System 2

3. Palliative Care at Sinai Health Dr
Palliative Care at Sinai Health Dr. Russell Goldman Director Of Temmy Latner 3

4. Out of the Shadows and Into the Circle Harpreet Bassi Executive Lead, Program Implementation The Change Foundation 4

5. Care Delivery Re-design
The Change Foundation
Ontario’s independent policy think tank - committed to changing the debate, practice and experience in health care - with the intent of prompting system-wide improvements for patients & caregivers. Here is how we influence the system:
Research
Policy Analysis
Care Delivery Re-design
Public Engagement

6. Our Focus on Family Caregivers
From The Foundation’s strategic plan focused on patient engagement and improving the patient experience in Ontario.
Through our engagement work, we realized, we needed to tilt our thinking from:
Patient Centred Care
Patient & Family Centred Care

7. The Caring Experience 2015-2016 - Our year of listening and learning
Our “on the ground” engagement and research activities are described in, Out of the Shadows and Into the Circle: From Listening and Learning to Action

8. Changing CARE: Designed to improve the experience of family caregivers in Ontario
Informed directly by the needs & experiences of Ontario’s caregivers & providers
Aims to develop local supports, programs, & resources that address four thematic needs identified by family caregivers & providers:

9. Changing CARE
Supports four health care partnerships
Cornwall Community Hospital
Huron Perth Healthcare Alliance
St. Joseph's Health Care London
Sinai Health System & WoodGreen
Common aim to inspire change in how health care organizations, providers, & family caregivers work together.

10. What Does Success Look Like for Changing CARE?
To Identify
What is most important:
To caregivers in improving their experience in their interactions and to demonstrate the difference the change makes to them
For caregivers to experience support in their caregiver roles
To work
Hand-in-hand with providers & caregivers in determining areas for improvement & the processes by which to achieve the goals
To Understand
The quality improvement changes that offer the greatest value & inform opportunities to spread, improve practice & inform policy
To Capture
The hearts & minds of organizations, providers, & funders to understand the importance of supporting the needs of caregivers, to build capacity & to create a social movement for change in ON

11. Changing CARE: Timeline April 2017 to March 2020

12. Changing CARE: Cultivating Change
Goal: Co-design a caregiver-friendly hospital and community hub. .
Target Population:
Caregivers of patients receiving care from the stroke rehabilitation, palliative care, or neonatal intensive care unit at Bridgepoint Active Health hospital as well as community caregivers
Project Focus
Build a culture & philosophy of care in which caregivers are formally recognized, valued for their deep knowledge, & actively listened to in order to assess their unique needs
Project Aims
Formally identify caregivers and ensure they are valued and supported
Enable Caregivers to thrive in their roles across the hospital to community continuum
Project Partners

13. Vijey’s Story 13

14. Session 1: What Does It Feel Like To Be A Caregiver Accessing Palliative Care Services?14

15. What Have We Learned? 15

16. Lunch! See You At 12:45pm! 16

17. Aboriginal Perspectives on caregiving Catherine Brooks Clinical Counsellor, WAASH-KESHUU-YAAN, Anishnawbe Health Toronto 17

18. Sheila’s Story 18

19. Session 2: How Can We Ensure Our Services Become More Caregiver-Friendly?19

20. Our Top Change Ideas! 20

21. What’s Next? 21

22. Thank you! 22