1. The Caregiver-Friendly Hospital and Community Hub
Cultivating Change:
The Caregiver-Friendly Hospital and Community Hub
November 19th, 2018
Caregiver Training
Prototyping Co-Design

2. Proposed Agenda 8:50 a.m. 9:00 a.m. 9:05 a.m. 9:35 a.m. 9:55 a.m.
Breakfast
9:00 a.m.
Introductions | Goals for the day | Review Agenda (5min)
9:05 a.m.
Shared understanding of ideal features for our project (30min)
9:35 a.m.
Examples of what others are doing (20min)
9:55 a.m.
8 Lean Wastes, Hierarchy of Effectiveness,
Adult Learning Principles and Health Literacy (25min)
10:20 a.m.
Session 1: Design possible solutions (100min)
12:00 p.m.
Lunch 2

3. Proposed Agenda 12:45 p.m. Report back (15min) 1:00 p.m.
Barrier and mitigation strategy (20min)
1:20 p.m.
Developing our work plan (70 min)
2:30 p.m.
Report Back: What are our deliverables (20min)
2:50 p.m.
Reflection & Next Steps (10min)
3:00 p.m.
Adjournment 3

4. What is the scope of our project?
Project Name
Objective
Caregiver Training
Proactively prepare caregivers to effectively support patients with their health care needs.
Comprehension checking: Is the caregiver confident that they understand their role throughout the rehab journey?
Provide caregivers with comprehensive transition instructions. 4

5. Caregiver ID/Circle of Care
All Stroke Projects
Project Name
Objectives
Caregiver ID/Circle of Care
Circle of Care: Improve how caregivers identify who are the health care providers in the patients’ circle of care.
Caregiver ID: Improve how providers identify who is in the patients’ support system.
Communication: Improve communications between caregivers and healthcare providers.
Knowing What To Expect
Provide clear and realistic expectations of what caregivers and patients can expect during their rehab journey.
Caregiver Training
Proactively prepare caregivers to effectively support patients with their health care needs.
Caregiver Support
Improve supports available to caregivers by creating (1) a support group for caregivers and (2) caregiver peer-peer support. 5

6. Current State Review Process mapping exercise
Patient-Oriented Discharge Summary (PODS)
My Guide for Stroke Recovery Binder
Stroke Education Series (6 modules) 6

7. Examples of what others are doing7

8. Toronto General Dialysis Training
Provides patients and families the education and training they need to perform dialysis at home, on their own.
The Innovation Room offers a home-like environment, where staff is close by for help. 8

9. Toronto Rehab Stroke Education
Intuitive, easy to use website
Resources are plainly listed at the bottom and clickable 9

10. St. Elizabeth Health Care (Elizz)
Collaboratively written with regulated health care professionals and communications team
Short tidbits about specific care needs and tips 10

11. St. Elizabeth Health Care (Elizz)
Collaboratively written with regulated health care professionals and communications team
Short tidbits about specific care needs and tips 11

12. Toronto Western Stroke Education Classes
Class is offered from 9:00 a.m. until 12:30 p.m.
A printable booklet is available online
Classes are offered as a 3 ½ hour block as opposed to multiple short sessions 12

13. Sunnybrook and St. John’s
Classes are offered only on outpatient
Hosts 2 group sessions where the My Guide to Stroke Recovery Binder is reviewed in-depth (1 hour each)
Current outpatients
Series focuses on home with stroke
“Home With Stroke” is offered to patients and caregivers and is provided in a group education format
Two sessions, one hour each
Review the My Guide to Stroke Recovery binder 13

14. Current state of online education for stroke survivors and family caregivers14

15. Electronic Caregiver Training Systems: Trualta15

16. Lean Wastes, Hierarchy of Effectiveness, Adult Education, & Health Literacy16

17.
T – Transport
I – Inventory Excess
M – Motion
W – Waiting
O – Overproduction
O – Overprocessing (using unnecessary higher grade materials)
D – Defect (Rework Waste)
S – Skills Waste (Underutilized creativity) 17

18. Hierarchy of Effectiveness18

19. Adult Education Principles
“Adults are characterized by maturity, self-confidence, autonomy, solid decision-making, and are generally more practical, purposeful, self-directed, experienced, and less open-minded and receptive to change.”
Adult Learners desire:
Relevance
Autonomy/control of the Learning Experience
Acknowledgement of prior experiences
Feedback and reward 19

20. https://www.youtube.com/watch?v=_8w9kdcRgsI 20
1. Look for clues. - Does the patient/caregiver miss appointments? - Do they write down information/instructions? - Do they take their medications correctly? - Do they complete forms properly? - Do they ask for more information if they don’t understand?
2. Use audio-visual aids.
3. Use demonstration.
4. Highlight or circle any take home points.
5. Use plain language and convey the most important concepts first. - Speak slowly. - Avoid jargon/acronyms.
6. Teach back.
7. Encourage patient/caregiver partnerships.
8. Encourage a support network. 20

21. Session: Let the prototyping BEGIN!21

22. LUNCH 22

23. Report Back
Session 2: Construct Prototype and prepare to present to the group. 23

24. Barriers and Mitigation Strategy24

25. Developing our work plan25

26. Report Back 26

27. Group Reflection 27

28. Next Steps 28

29. Thank you! 29