1. The practicalities of PPI
How do we go about it?
The practicalities of PPI

2. When should we involve?

3. Who should we involve? Depends on the stage of the research cycle
Depends on the research design
Depends on the topic
Depends on practical constraints – e.g. time
Depends on the agreed role

4. Which level of involvement is best?
Consultation?
Collaboration?
Co-production?
User led?

5. Consultation Asking people for their views
One off meetings - patient panel
When you consult people who use services about research, you ask them for their views and use these views to inform your decision-making. For example, you might hold one-off meetings with people who use services to ask them for their views on a research proposal.  You will not necessarily adopt those people's views, but you may be influenced by them.

6. As members of a steering committee for a research project
Collaboration
Involves an active, on-going partnership with members of the public in the research process.
As members of a steering committee for a research project
Collaborating with members of the public to design, undertake and/or disseminate the results of a research project.
Collaboration involves active, on-going partnership with members of the public in the R&D process. For example, people who use services might take part in a steering committee for a research project, or collaborate with researchers to design, undertake and/or disseminate the results of a research project.

7. Co-production
Co-producing a research project is an approach in which researchers, practitioners and the public work together, sharing power and responsibility from the start to the end of the project, including the generation of knowledge
INVOLVE 2018
research-project/

8. User control
Where the initiative and subsequent decision making is with service users
It does not mean that service users undertake every stage of the research, or that 'professional' researchers are necessarily excluded from the process altogether. 
User-controlled research might be broadly interpreted as research where the focus of power, initiative and subsequent decision making is with service users rather than with the professional researchers.  It does not mean that service users undertake every stage of the research, or that 'professional' researchers are necessarily excluded from the process altogether.
They may be involved in collecting data, analysis and report writing.

9. Depends on the study:
A study on identifying a gene for a rare inherited disease
Mostly conducted in the lab by scientists
Study being run in a high tech, well- resourced research centre
A study exploring older people’s views on access to hearing screening
Mostly conducted in clinics and the home through interviews and a survey
Study being run from a cash starved community clinic

10. Small group work Read the case studies
Which members of the public would be useful to involve and at what stage? How would you identify these people and approach them?
What might their role be?
What resources would be needed to support PPI in this project? Are there any special considerations?

11. PPI: Good practice Start early
Who are you looking for? Give consideration to the aims of the project, the tasks to be addressed and whether people are able to fulfil them
Be clear about reasons for involving people and what their role is (a ‘menu of opportunities’), what are you expecting them to do? – role description / person spec / terms of reference
Check that whole team, including members of the public, are clear about reasons for and the role of involvement
Identify potential barriers that need to be overcome
Allow time for mutual understanding
Offer appropriate training and ongoing support

12. Good practice (2)
A minimum of two people who use services should be invited on any group/panel/project
Keeping people in touch & fully informed about the project
Making sure people have a real chance to contribute
Nurture and ethos of partnership: mutual respect, and mutual clarity about what the involvement is for
Expectations are often the biggest problem but by making these explicit, different perspectives can be constructive
Avoid jargon

13. Good practice (3) Payment and expenses
Reimbursement of expenses – not out of pocket
Payment for time, skills and expertise
It is good practice for members of the public who are actively involved in health and social care research to be paid for their time, skills and expertise
Acknowledgement and other forms of reward

14. Showing you’ve taken ppi seriously in the application
Describe who has been involved at each stage
Describe what PPI has contributed to the proposal
Describe how the proposal has benefited from the contribution
Describe how involvement will continue throughout the project and the on-going contribution you expect it to make
Include (adequate) costs of PPI in your application