1. Agenda 8:00pm Welcome Marc Richmond / Elfi Pahl 8:10pm
Steering Committee Report
Marc Richmond
8:20pm
DCC Update
James Kirklin / Nick Timkovich
8:40pm
Database Committee Report
Jennifer Conway
8:55pm
Quality of Life Update
Karen Uzark
9:00pm
Foundation Update
Craig Collum
9:10pm
Scientific Committee Report
Elfi Pahl
9:20pm
Enduring Hearts
Bob Boucek
9:25pm
New Foundation Officers
Melanie Everitt
9:30pm
Adjourn

2. Nov. 2017-Nov. 2019 Database Committee
Jennifer Conway, MD Chair Heather Tinling, BSN, RN Non Physician Rep. Rachel Ryan, BSN, RN Non Physician Rep. Kurt Schumacher, MD, MS Member at Large William Jeff Dreyer, MD Member at Large Jacob Simmonds, MD Member at Large Aamir Jeewa, MD Member at Large

3. Infection Form Mapping
2018 Activities
Infection Form Mapping
New list of answer options to be displayed under Surgical Therapy (previously a free text)
Under final review

4. Infection Form Mapping
2018 Activities
Infection Form Mapping
New list of answer options to be displayed under Significant Long Term Sequelae (previously a free text)
Answer categories include
Kidney Consequences
Neurological Consequences
Respiratory Consequences
GI Consequences
PTLD Consequences
Will go live in 2019

5. Post Transplant Annual Follow-up Form
2018 Activities
Post Transplant Annual Follow-up Form
Finalized list of medication options (previous a free text)
Will go live in 2019
Medication entry guidelines: We are no longer categorizing medications by indication of use as intent is very difficult to assess and some medications may be used for multiple indications and have multiple effects despite intended use for only one indication or another
New Medication Categories:
Cardiovascular
Anti-Hyperlipidemics
Anticoagulants
Anti-Infectives
Endocrine GI
Neuro/Psych
Pulmonary
Supplements
Immunosuppressants
Bone Marrow Stimulant
Other

6. Cause of Death: Other, Specify
2018 Activities
Cause of Death: Other, Specify
Review of several hundred free text entries
Committee reviewing mapping and expanding cause of death answer options
Will go live in WBDE system in 2019
Once live, existing free text entries will automatically be mapped to new options where appropriate

7. 2018 Activities: WBDE Clinical Summary

8. 2019 Committee Goals Continued Form Review
Review how medical history is captured at time of listing
Review Renal Transplant / Dialysis data collection
Continued review of ‘other, specify’ free text entries