1. CP Research Priorities
Compartive Effectiveness/Interventions
Physical Activity
Comparative Effectiveness
CPRN Registry
SDR vs. Botox
Best Practices/QI
ITB QI
Orthopedic Indications
Surgical Disparities
Supported Mobility
Epilepsy
SEMLS Outcomes
SDR in GMFCS IV/V
Innovations
No Entry
Levels of Physical Activity
No Entry
Exercise Strategies
Chronic Disease Risk
Affect on Outcomes (e.g. pain)

2. CP Research Priorities
Aging/Longitudinal
Pain/Fatigue
Understanding Aging Process
No Entry
Adult Outcomes/Issues
CPRN Registry
Adult Social/Emotional/Function
Adult Pain
Longitudinal Outcomes
CP PRO
Prevention
Adult Pain
Treatment
Trials
No Entry

3. CP Research Priorities
CAM
Neuroplasticity
Comparative Effectiveness
No Entry
Cost and Coverage
Understanding Mechanism
No Entry
Trials

4. NIH WORKSHOP PRIORITIES
Workshop Priority
CPRN Addressing?
Start a National Registry
Yes
Comparative Effectiveness
Starting-SDR vs. Botox
Studies of Adults
Starting-Adult Pain, Adult Outcomes
Bring in New Researchers
Starting
Basic and Translational
Not a goal for CPRN

5. NIH/NCMRR PRIORITIES FOR CP
NIH/NCMRR PRIORITY
CPRN ADDRESSING?
Early Diagnosis and Intervention
Starting-Genetics
Examine Interventions Across Spectrum
Yes-several studies
Examine Combinations of Therapies No
Examine New Study Designs
Yes-PBE
Increase PRO’s
Yes-CP PRO, Adult studies

6. Call to Action Physical Activity studies using CPRN
More studies in highest priority areas
Interventions, especially CER
Aging
Longitudinal design
Pain
Early Diagnosis and Treatment
Think about:
Where does CAM and Plasticity fit for CPRN
Other areas of study