1. The Swedish Pregnancy Register
Michaela Granfors
Vice register holder, Pregnancy Register
Consultant in Fetal medicine and Obstetrics, Karolinska University Hospital
PhD, post doc Clinical Epidemiology Unit, KI

2. Contents of presentation
Perinatal care in Sweden
The Swedish Pregnancy Register
Data from the Register / new Dashboards
Time for questions

3. Contents of presentation
Perinatal care in Sweden
The Swedish Pregnancy Register
Data from the Register
Time for questions

4. Perinatal care in Sweden
Perinatal care in Sweden is
standardized
free of charge
almost all women attend

5. Perinatal care in Sweden
During pregnancy
Maternity care centers
Midwives are the main providers of antenatal care
Referral to Obstetrician just if needed
Ultrasound
all women offered one ultrasound at weeks of gestation
1 trimester ultrasound: ~ 50%

6. Perinatal care in Sweden
Deliveries
Deliveries occur at hospitals, led by midwifes
Around deliveries / year
Gothenburg University Hospital: ~ /y
Lycksele Hospital: ~ 350/y
Deliveries are centralized when needed
Births before 27 weeks of gestation to University Hospitals
Small hospitals: ≥ 37 weeks of gestation,
uncomplicated pregnancies ….

7. Perinatal care in Sweden
Postnatal care
Hospital stay
Around 50% ≤ 48 hours, 50% > 48 hours
Aftercare visit (6-8 weeks after delivery)
Maternity care center, midwife

8. Contents of presentation
Perinatal care in Sweden
The Swedish Pregnancy Register
Data from the Register
Time for questions

9. Our vision is to improve the health of mothers and babies

10. The Swedish Pregnancy Register
a certified national quality register initiated by the Swedish Healthcare
Quality tool
Decisionsupport KUB
Research

11. The Swedish Pregnancy Register
Start 2013
With around 115,000 births in Sweden per year, the registry is a
great source of knowledge and development

12. Covers the complete chain of care
Neonatal care - SNQ
3 month before conception
Conception
Prenatal care
Ultrasound
Childbirth
Check-up at
prenatal care
Assisterad befruktning Q-IVF
”Bristningsregistret”- Register of obstetric lacerations

13. Who works for the Pregnancy Register?
Olof Stephansson, register holder
Michaela Granfors, vice register holder
3 working groups
Maternity care, head: Kerstin Petersson
Fetal diagnostics, head: Peter Conner
Delivery, head: Anna-Karin Wikström
Jonas Söderling and John Moshtaghi-Svensson, statisticians
Else Friis, administrator
Petra Ryman och Linda Rilby, midwifes
Control group
Camilla Björk, managing director for MedSciNet

14. Transfer of data into the register
Manually web-entered at antenatal care
- pregnancy week 12+
- 2 months after delivery +
Directly from KUB+ (decision support as well)
From medical
records*
Antenatal care
Ultrasound
Delivery
Pregnancy Register
Trigger points for automatic transfer to the register:
Delivery
Final signing
Archive signing
+ Data is entered directly into the register

15. 92% of all deliveries are transferred directly from electronic medical records

16. Eliminating double registration

17. How often is the data updated?
Twice a day

18. Which women are registered?
Information at first visit at maternity care center
All pregnant women who do not actively opt out

19. Who can see the data?
Public dashboards (homepage, vården i siffror, mm)
All midwifes, nurses and doctors who work within obstetrics and gynecology in Sweden can log into the Register
Different permissions

20. Medical birth register
Is the Pregnancy Register the same as the medical birth register (MFR)?
No!
Medical birth register
National Board of Health and Welfare
Compulsory for health care providers to report
Data since 1973
Delay for presentation of data
Fewer variables

21. Some ongoing projects
Pregnancy survey
Education
New Dashboards

22. Pregnancy survey - pilot
Survey to women (1177, health care guide)
Pregnancy week 25
2 months and
1 year after delivery
Questions
PROM (patient reported outcome measures)
PREM (patient reported experience measures)

23. Transfer of data into the register
Manually web-entered
Directly from KUB+ (decision support as well)
From medical
records*
Antenatal care
Ultrasound
Delivery
- gest week 12 +
Pregnancy survey
Week v 25 +
2 months after
delivery +
1 year after delivery +
- 2 months after delivery +
Pregnancy Register
Trigger points for automatic transfer to the register:
Delivery
Final signing
Archive signing
+ Data is entered directly into the register

24. Education initiative
2 midwives work 40% for the register since januari
Education delivery units – use of Pregnancy Register

25. New dashboards
New design
Updated every day!

26. Contents of presentation
Perinatal care in Sweden
The Swedish Pregnancy Register
Data from the Register / new dashboards
Time for questions

27. Årsrapporten finns tillgänglig för alla på hemsidan

28. Data - Cesarean frequency in total

29. Våra partner