1. Understanding and working with the Health System

2. Who can influence commissioning of services?
H:\Fundays & Activities\Parent Involvement\Parent Forum (formerly Talking Shop)\2017\Understanding and working with Health
Commissioning on health diagram

3. How can the parent forum get involved in the commissioning and delivering of Health services?

4. Clinical Commissioning Group
To help shape and develop health services Parent forums should be involved with their Clinical Commissioning Groups (CCGS)
CCGs make the decisions about money and commission specialist services such as OTs, SLTs and CAMHS

5. How can we approach Islington CCG?
Having a meeting to discuss needs and priorities (today)
Research the law to have a better knowledge and understanding and to find a way in
Matching your priorities with CCG’s

6. Is that happening? Are you informed?
Research the law to have a better knowledge and understanding and to find a way in
National duties around participation:
NHS Constitution:
‘The NHS belongs to the people. It is there to improve our health and wellbeing…’
‘NHS England will ensure that public, patient and carer voices are at the centre of our healthcare services, from planning to delivery. Every level of our commissioning system will be informed by insightful methods of listening to those who use and care about our services’
Is that happening? Are you informed?

7. NHS Act 2016 and Health & Social Care Act 2012
Strengthened NHS constitution by defining the following duties:
Duty to promote involvement of each patient & duty to involve
Public participation duties on CCGS and NHS England
Duty to reduce health inequalities
Way in: NHS and CCGs have a duty of participation and involvement

8. SEND Reforms Section 19 Duties
New duties to involve children, young people and their families with regard to:
The views, wishes and feeling of the child, young person or parent
The importance of their full participation in decisions
The importance of their being provided with the necessary information and support to participate: Is this happening? Is the information clear and accessible?
The need to support the child or young person to achieve the best possible educational and other outcomes, preparing them effectively for adulthood: Is there good information about transition? Is there enough support from the age of 9?
We already have a way of getting involved in our Local SEND inspections – important to participate

9. Matching your priorities with CCG’s
10 priorities for commissioners
Active support for self-management – i.e. avoid family breakdown, crisis
Primary intervention
Secondary prevention – having an existing condition that develops into a second one - i.e Autism escalating to mental health problems
Managing ambulatory care sensitive conditions – stopping children from going to hospitals
Improving the management of patients with both mental and physical health needs
Care co-ordination through integrated health and social care teams - Parents often report a lack of communication between professionals
Improving primary care management of end-of-life care
Effective medicines management – i.e. antipsychotics given to children with learning disabilities?
Managing elective activity – referral quality
Managing emergency activity – urgent care

10. Your needs and priorities
Important to focus only in 2 or 3 priorities
We can discuss the needs of this group today and try and match it with CCG’s priorities at our next meeting
We have invited a health professional to explain the health system structure and priorities in Islington

11. Issues parents have previously raised at the forum
Family carer participation in the development of services – co-production
Lack of follow-up information, on results and service specifications, after parents participate in consultations for the development of disability services
Support on preparing for adulthood from the age of 9
Lack of communication between professionals