1. Setting up patient and relative support groups
Mo Peskett
Chair
ICUsteps
Peter Gibb
Chief Executive
ICUsteps

2. The need for support

3. Why? Onset of critical illness Physical and Psychological Impairment
Inequalities in rehabilitation
Cost
Socio/Economic Burden
Change and adapting

4. Physical effects Muscle wastage Difficulty swallowing Taste changes
Hair loss
and more

5. Psychological effects
Paranoia
Nightmares
Vivid dreams
Hallucinations
Cognitive dysfunction
PTSD
Delirium

6. Effect on families

7. Follow-up

8. Working in partnership
Invitations to ex-patients and relatives
Tap into reservoir of goodwill
Establish support group
Inaugural drop in

9. Publicity
Logo
Posters
Website
Follow-up
MKGH media briefing

10. Drop in - The reality

11. Spreading the message Nursing in Critical Care article
Drop in visitors
Intensive Care Foundation

12. The Five Step Plan Establish a core group Define a group structure
Agree a support method
Drop in practicalities
Funding needs

13. Establish your core group
Patients and relatives out of ICU for months
Agree your objectives
Meet at least times to establish group bonds

14. Define group structure
Partnership between ex-patients and health professionals
Independent
Organisation type
CVO support and advice

15. Agree support method
Drop ins
Alternative options

16. Drop in practicalities (1)
Venue
Frequency
Duration

17. Drop in practicalities (2)
Timing
Publicity
Layout

18. Drop in practicalities (3)
Supplies
Roles
Insurance

19. Funding needs Support groups have minimal funding needs
Contact local CVO for grant information
Sponsored events

20. ICUsteps local groups Members of ICUsteps Independent Startup grants
Support network
Broader opportunities

21. Thanks for listening mo.peskett@icusteps.org peter.gibb@icusteps.org
@ICUsteps