1. EULAR Study Group on SLE
The EULAR Study Group on SLE was established in 2011 and includes so far more than 120 individuals who have joined the group and have actively participated in the meetings
Target population includes trainees, rheumatologists, clinical immunologists and basic/translational researches interested in SLE
The aims and objectives of the Study Group on SLE are:
Network clinicians and researchers interested in SLE and increase the pool of younger people interested in the disease
Inform and coordinate educational activities for fellows, nurses and patients
Develop and disseminate management recommendations for SLE by encouraging also the participation of new people both willing and able to support such activities
Update on research initiatives at the translational and clinical level
Discuss topics that we wish to propose for the annual EULAR meeting scientific meeting
The work and contribution of the Study Group includes so far:
Reports by the members of the lupus meetings and congresses they have organized (e.g. European Lupus Meeting)
Educational issues such as training sites, undergraduate student curricula, slides collection
Basic/translational and clinical research initiatives have been presented such as: development of a European SLE registry, biologics registry, CNS lupus project, hematological SLE study, investigator-initiated controlled studies (lupus nephritis, mesenchymal stem cells)
Patients’ perspective and initiatives (e.g. the role of lupus groups in enhancing the clinical setting and supporting the advancements in the disease
Proposals for EULAR-endorsed recommendations on lupus (e.g. laboratory tests in SLE, diagnosis and management of Cutaneous Lupus, Pregnancy/Contraception/Fertilization, new EULAR/ARC SLE classification criteria)
Ongoing and pending proposals for research grants (H2020, IMI, FOREUM etc.) have also been presented, followed by discussions for possible collaborations
Achievements / publications:
Fanouriakis A, et al. Ann Rheum Dis. doi: /annrheumdis
Andreoli L, et al. Ann Rheum Dis. doi: /annrheumdis
Pamfil C, et al.. Rheumatology (Oxford). doi: /rheumatology/keu482
Bertsias GK, et al. Ann Rheum Dis. doi: /annrheumdis
Mosca M, et al. Autoimmun Rev. doi: /j.autrev
Bertsias GK, et al. Ann Rheum Dis. doi: /ard
Mosca M, et al. Ann Rheum Dis. doi: /ard
Bertsias G, et al. Lupus. doi: /
Bertsias GK, et al. Ann Rheum Dis. doi: /ard
Gordon C, et al. Ann Rheum Dis. doi: /ard
Bertsias G, et al. Ann Rheum Dis Feb;67(2):
Task Force Committee and Contact Details:
Dimitrios T. Boumpas (leader),
George Bertsias (facilitator),
Antonis Fanouriakis (facilitator),