1. How has Realistic Medicine influenced me?
Arlene Coulson
Lead Clinical Pharmacist, Specialist Services and Specialist Surgery
Honorary Lecturer, Non-Medical Prescribing Course, University of Dundee

2. NHS Tayside Patient and Public Forum for Medicines (PPFM)

3. Key theme for patients:
Empowering patients to gain knowledge and ask questions about their medicines.

4. Permission to ask
PATIENT AND PUBLIC FORUM FOR REALISTIC MEDICINES
1. Feedback with patient education materials - local and national
2.Attendance at different meetings/
national conferences
3.Testing materials for development of patient apps
4. Developing information for Public Access website
5. Recording for video clips/patient scenarios
6. Raising issues from a patient perspective e.g. medicines waste/discharge processes
PATIENT AND PUBLIC FORUM FOR REALISTIC MEDICINES
1. Feedback with patient education materials - local and national
2.Attendance at different meetings/
national conferences
3.Testing materials for development of patient apps
4. Developing information for Public Access website
5. Recording for video clips/patient scenarios
6. Raising issues from a patient perspective e.g. medicines waste/discharge processes

5. PATIENT AND PUBLIC FORUM FOR REALISTIC MEDICINES
What is the PPFM group?
PATIENT AND PUBLIC FORUM FOR REALISTIC MEDICINES
1. FEEDBACK
2. PARTNERS
3. TESTING
4. INFORMATION
5. PATIENT SCENARIOS
6. RAISE ISSUES
NHS Tayside website> Our Services > Medicines > Patient and Public Forum for Medicines

7. Citizens Jury (Perth) top three recommendations
Inform and educate patients of their right to ask questions of health professionals and which questions to ask.
Training for all health and social care professionals on shared decision making
The opportunity for an independent person to join conversations between professionals and patients.

8. Medicine Sick Day Rule Cards
Avoid the “Triple Whammy”
Patient empowerment

9. Margaret and her story.....
Margaret and her story.....
Age 73, very active independent person. January 2018 was admitted to hospital with severe groin pain getting progressively worse. Diagnosis ?septic arthritis in right hip PMH: Hypertension, Osteoarthritis, Myocardial infarction Treatment for pain and after 3 doses of Naproxen (NSAIDs)..... By day 5, Acute Kidney Injury days of dialysis required days in hospital.

10. Margaret is my Mum.....
Margaret is my Mum......

12. What the forum means to the people:
“Being an active person on the Patient & Public Forum for Medicines during the last 4 years has been an amazing journey. Constantly learning, being involved in local medicines campaigns and medicines safety national conferences. Feeling valued, listened to and fully appreciated, has completely altered the way I see just how the NHS works, and has highlighted to me the key difficulties and obstacles that lay ahead in the future of the NHS. This is where I know I can help, as I have found my voice as a realistic and natural communicator between the public and the NHS.” (2019)
“I had to pause the TV for my husband the other day when the BBC news was describing a cancer drug that didn’t get approved and I could explain to him what a QALY is” (2014)

14. Thank you Arlene.coulson@nhs.net