1. User survey for BRCA Service for Ovarian Cancer Patients (on blood samples)
Sept 2017

2. Since 2015 we have provided a BRCA testing service for ovarian cancer patients. As a referrer to this service, we would appreciate you taking a few minutes to complete this short survey about this BRCA service – your feedback is important and will help us to ascertain whether we are providing a good quality service, and how we can improve in the future

3. Survey sent on 12/09/2017 to 12 gynaecological cancer referrers
deadline was 29/09/2017
reminder was sent out on 25/09/2017
Responses – 3 received (25% response rate)
Unless indicated otherwise response options were:
Poor, Below average, Average, Good, Excellent, N/A

4. Q1 – How would you rate the following sources of information available about our BRCA service?
Laboratory website
Service-specific notfications provided by the laboratory
Information provided by clinical genetics about the service

5. Q1 – How would you rate the following sources of information available about our BRCA service?
Laboratory website
Good, n/a, Excellent
Service-specific notfications provided by the laboratory
Good, Excellent, Excellent
Information provided by clinical genetics about the service

6. Q1 – comment from respondent 1
“One concern is that the referrer is not notified that a sample has been received and a result is pending – having that feedback would provide reassurance that a sample has not been lost, and help planning to see the patient around the predicted date when results will be available.”

7. Q2 – How would you rate the quality and clinical usefulness of the BRCA reports that you receive from the laboratory?
Good, Excellent, Excellent

8. Q3 – the turnaround time (TAT) for BRCA results is 8 weeks – how would you rate the performance of the laboratory in delivering this TAT?
Good, Good, Good

9. Q4 – How would you rate the responsiveness of the laboratory staff to any queries or requests for information, either by telephone or by ?
N/A, Excellent, Good

10. Q5- As you may be aware we have introduced a new BRCA request form (previously filled in a purple form and an audit form – now all in one). How would you rate the BRCA request form?
Excellent, Excellent, Good Comment from respondent 2: Much better to have only one but wasn’t aware of the change until moved to Swansea.

11. Q6 – are you aware that there is now a funded service available for Welsh patients to perform a BRCA screen on tumour tissue?
Response option
No. of times selected
Yes, and have used 2
Yes, but have not used 1 No
Comment from responder 2: Thought this was being done automatically on all germline
patients – is this not the case?

12. Q7 – Are there any additional services we could offer in this area?
All 3 skipped this question

13. Q8 – Any comments in relation to any of the questions, the BRCA service in general or any improvements
Responder 1: Thank you for providing this very important service and for dropping the age cut-off

14. Summary, Conclusions and Actions
No ratings lower than ‘Good’
No current desire for expanded service from this user group
Consider options for advising of received/ongoing cases
Advise clinician 2 that tumour testing is not automatic
(Improve TATs)