1. ANZDATA Session, ANZSN 2013 Steve Chadban Nick Gray Kev Polkinghorne
Melanie Wyld
Stephen McDonald
Phil Clayton
Matt Jose
Stock, flow and direction
ANZDATA Audit
Haemodialysis prescription
Pregnancy after transplant – kids
Deceased donor trends
Living donor trends
Who and What’s next at the registry

2. RRT A&NZ – Jan 2011 Transplant 9,968 Dialysis 13,063 RRT Jan 2010
23,031

3. RRT A&NZ – 2011-12 2,937 new starts* Transplant 9,968 117
pre-emptive Tx 4%
2,820
new dialysis
96%
Dialysis
13,063
*Similar number do not receive RRT. See Sparke et al, AJKD 2012

4. RRT A&NZ – 2011-12 2,937 new starts Transplant 9,968 117 + 956 - 248
pre-emptive Tx
839 Tx
from dialysis
2,820
new dialysis
248
graft
fail
Dialysis
13,063
+ 3,

5. RRT A&NZ – 2011-12 2,937 new starts 2,087 Deaths Transplant 9,968
- 243
117
pre-emptive Tx
839 Tx
from dialysis
2,820
new dialysis
243 death
with function
2.4/100 pt yrs
1,844 death
on dialysis
14.0/100 pt yrs
Dialysis
13,063
+ 3,
- 1,844
248

6. RRT A&NZ – 2011-12 2,937 new starts 2,087 Deaths Transplant 10,433 117
pre-emptive Tx
839 Tx
from dialysis
2,820
new dialysis
243 death
with function
2.4/100 pt yrs
1,844 death
on dialysis
14.0/100 pt yrs
Dialysis
13,448
248
RRT 2012
23,881
+ 3.7%

7. ANZDATA Registry Annual Report 2012
Figure 1.4
ANZDATA Registry Annual Report 2012

8. ANZDATA Registry Annual Report 2012
Figure 1.5
ANZDATA Registry Annual Report 2012

18. ANZDATA Registry – Plans, 2013+
Aims:
Annual Report 2013 Earlier, better Phil Clayton
Real-time data Efficiency, accuracy Kylie Hurst
KPI, stock and flow Stephen McDonald
Identified data Key dialysis and transplant outcomes – website
Collaborations ANZ, Government, International
Research Maximise output, impact, involvement
NHMRC funding application
Methods:
Funding AOTA, NZ Department of Health, KHA, Amgen
Hardware New interfaces, new database – 80% there
New People Data team: Kylie Hurst, IT Maneesha Kandamby
Epidemiology Fellow: vacancy arising
Steering Committee Chair – Matt Jose
Executive – Clayton and Past SC Chair
Working Groups

19. ANZDATA Registry Working Groups
Manger
Members
Cancer
Angela Webster
Germaine Wong*, Rob Carroll, Jonathon Craig,
Randall Faull, Adrian Hibberd,
Stephen McDonald
Haemodialysis
Kevan Polkinghorne
Mark Marshall, Richard Allen, Rowan Walker,
Vincent Lee, Stephen McDonald
Indigenous
Matthew Jose
John Collins, Gillian Gorham, Mark Thomas,
Jaqueline Hughes, Lesley Salem,
Natasha Rogers, Stephen McDonald
Peadiatric
Sean Kennedy
Lil Johnstone, Phil Clayton,
Peritoneal Dialysis
Neil Booudeville,
David Johnson, Kym Bannister, Kate Wiggins,
Philip Clayton, Stephen McDonald
Transplant
Scott Campbell
Wai Lim*, Helen Pilmore, Graeme Russ,
Steven Chadban, Stephen McDonald

20. ANZDATA Registry – thanks!
Units – patients, doctors, nurses, allied
Data and time
Interest and attendance
Enquiries - >2000 per annum
Feedback
Funders:
Australian & NZ Governments, KHA, Amgen, pharma
ANZSN
ANZDATA stand, ANZDATA Session
Workers within ANZDATA
Executive, Office, Steering Committee and Working Groups

21. ANZDATA Session, ANZSN 2013 Steve Chadban Nick Gray Kev Polkinghorne
Melanie Wyld
Stephen McDonald
Phil Clayton
Matt Jose
Stock, flow and direction
ANZDATA Audit
Haemodialysis prescription
Pregnancy after transplant – kids
Deceased donor trends
Living donor trends
Who and What’s next at the registry