1. Learning About PSC in the Era of Social Media
Sumera H. Rizvi, M.D. Konstantinos N. Lazaridis, M.D.
Senior Associate Consultant, Consultant,
Gastroenterology & Hepatology Gastroenterology & Hepatology
Assistant Professor of Medicine Professor of Medicine

2. PSC and Social Media What is out there?
YouTube
Twitter
Facebook (e.g. support groups)
Blogs
Other

3. PSC and Social Media What is reliable information?
Trustworthy
Up-to-date
Unbiased
Other

4. PSC and Social Media Which information to be skeptical of?
Biased/conflict of interest
Commercial – intended to generate money, not educate (e.g. WebMD.com)
Accuracy i.e. is it based on scientific literature
Home remedies
Dietary supplements
Credible source
Outdated

5. PSC and Social Media Trustworthy Resources
PSC Partners Seeking A Cure
NIH/NIDDK
ClinicalTrials.gov

6. PSC and Social Media Trustworthy Resources
NORD
NoPSC
PSC Forum

7. PSC and Social Media Trustworthy Resources
Mayo Clinic Connect
Websites of Medical Societies
Websites of Academic Medical Centers

8. Why Do we Need a Mayo Clinic Blog for PSC?
Knowledge is power
Communication matters

9. Why Do we Need a Mayo Clinic Blog for PSC?
Education and communication tool
Patients
Providers
Public
Disease and research program awareness
Enhancement of patient recruitment for studies

10. Why Mayo Clinic Connect?
Existing platform
Available expertise
Connection with Mayo Social Media
Available moderators

12. Thank You
Questions?