1. TAND 101 TANJALA T. GIPSON, M.D. DIRECTOR, TAND CLINIC
TSC CENTER OF EXCELLENCE
LE BONHEUR CHILDREN’S HOSPITAL
MEMPHIS, TN
MAY 28, 2019

2. GOALS DEFINE TAND REVIEW TAND CHECKLIST LIFETIME
THE TAND EVALUATION: WHAT TO EXPECT
PREPARING FOR YOUR TAND EVALUATION
KEY POINTS
QUESTION AND ANSWER

3. TAND = TUBEROUS SCLEROSIS ASSOCIATED NEUROPSYCHIATRIC DISORDERS  

4. TAND

5. TAND
0-3
3-6
6-9
12-16
18-25
prn >25
Comprehensive formal evaluation

6. TAND Practice Parameter based Management Strategies, eg Autism
Consider the need for an IEP
Medical evaluation for sudden behavioral change
Screen for TAND at least annually

7. TAND CHECKLIST LIFETIME VERSION

8. TAND CHECKLIST LIFETIME VERSION

9. TAND CHECKLIST LIFETIME VERSION

10. TAND CHECKLIST LIFETIME VERSION

11. TAND CHECKLIST LIFETIME VERSION

12. TAND CHECKLIST LIFETIME VERSION

13. TAND CHECKLIST LIFETIME VERSION

14. TAND CHECKLIST LIFETIME VERSION

15. TAND CHECKLIST LIFETIME VERSION

16. TAND CHECKLIST LIFETIME VERSION

17. TAND CHECKLIST LIFETIME VERSION

18. TAND CHECKLIST LIFETIME VERSION

19. TAND CHECKLIST LIFETIME VERSION

20. TAND EVALUATION: WHAT TO EXPECT
Visit preparation
TAND Checklist
TSC specific concerns
Interdisciplinary team approach
Neurology/neurodevelopmental disabilities specialist
Speech/language pathologist
Social worker
Neuropsychologist
Child Life Specialist
Chaplain (upon request)
Ongoing, individualized management

21. TAND EVALUATION: HOW TO PREPARE
RECORDS
VIDEOS
TAND CHECKLIST
PATIENT PORTAL SIGN UP
TIME
ACTIVITIES
SNACKS

22. TAND TAKEAWAYS Avoid waiting. It’s never too late or too early.
Research available clinical services and requirements.
Communicate with the TS Alliance.
Don’t give up hope!

23. THANK YOU!