1. Titre présentation Sous titre Intervenant 1 Toronto / March 28th, 2011 Marie-Jo Guisset-Martinez Programmes Manager To help live with dementia To help anticipate "Mobile support services to meet the users needs in rural French areas " Des services mobiles pour répondre aux besoins dans les zones rurales françaises A five projects comparative approach

2. Titre présentation Sous titre Intervenant 2 Conflict of Interest Disclosure Marie-Jo Guisset-Martinez Has no real or apparent conflicts of interest to report. « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez

3. Titre présentation Sous titre Intervenant 3 I.The French rural context II.The five projects / our method III. 1. Success factors 2. Opportunities of the rural context 3. Results of such projects in rural areas « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez

4. Titre présentation Sous titre Intervenant 4 4 octobre 20144 octobre 20144 octobre 2014 4 Population Density France 2006 « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez

5. Titre présentation Sous titre Intervenant 5 14 mars 2011 5 I. Difficulties due to the rural context  Distances :  Isolation and lonelyness  Aging permanent population  Young people live in the cities  None or a few neighbours  Problems of transports  Difficulties for driving (old age and dementia)  Winter / snow  Lack of public transports  Lack of provisions  Lack of services (day and night care)  Lack of doctors and nurses « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez

6. Titre présentation Sous titre Intervenant 6 4 octobre 20144 octobre 20144 octobre 2014 6  1. Atout Forme à Lugagnac « Well being worksops » in 3 different places  2. Les Relais Cajou à Tours « Mobile day care services »  3. Équipe mobile Le Relais des Aînés à Carrouges Mobile team : relational support programme at home  4. Cafés mémoire itinérants dans l’Ain Mobile Memory Cafés  5. Équipe mobile Alzheimer (EMA) en Indre et Loire Alzheimer mobile team Our method: Working group / participative observation / interviews II. Five local projects « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez

7. Titre présentation Sous titre Intervenant 7 4. MSA Bourg en Bresse (01) 4. MSA Bourg en Bresse (01) BOURG EN BRESSE LYON « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez 1. Atout Forme Lugagnac (46) 1. Atout Forme Lugagnac (46) 5. ADMR Tours (37) 5. ADMR Tours (37) 2. Relais Cajou Tours (37) 2. Relais Cajou Tours (37) 3. Relais des Aînés Carrouges (61) 3. Relais des Aînés Carrouges (61) PARIS ALENÇON TOURS BORDEAUX

8. Titre présentation Sous titre Intervenant 8 Organised in 3 villages: Workshops for : Carers and cared for A better understanding of the situation Sharing nice time together out of home Discovering new activities Improving the relationship 8 II. 1 Atout Forme – Lugagnac (46) Nb people with dementia + family caregivers 1) 20 +17 2) 10 + 5 3)8 + 8 « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez

9.  Itinerant day care program  The « singing memory »  Memory café  A shared lunch (staff and participants)  Convenience  Homecare  Support  Welcoming 9 2. Les Relais Cajou  Nb people 7 p/day Duration : 1 day a week « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez

10. Titre présentation Sous titre Intervenant 10 At home : The mobile team propose : Individual relational support Psychosocial interventions Housing environment adaptation Into the nursing home : Bringing people together (bus or car) for an afternoon coffee Discussion groups (for carers) Leisure activity (for people with dementia) An help line 10 3. Mobile team Le Relais des aînés – Carrouges Nb people Once or twice a week for each 3 families « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez

11. Titre présentation Sous titre Intervenant 11  Speaking  Sharing one’s other’s concerns  Crying – laughing  Mutual listening  Solving situations  Individual evolution  For the team, Cafés mémoire imply :  Accepting to be surprised  Not to know, to be flexible  A session of 6 meetings /village each 2 weeks ▪ nb10 to 28 participants / meeting 11 4. Cafés mémoire Itinérants (Mutualité Sociale Agricole –Ain 01) « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez

12. Titre présentation Sous titre Intervenant 12  Daily life activities at home to empower the person  Supporting the person capacities by walking to the market visiting « her » village, gardening…  Giving advice to the family and information on care 12 5. Équipe mobile Alzheimer Santé Plus Tours Alzheimer mobile team EMA « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez

13. Titre présentation Sous titre Intervenant 13 14 mars 2011 13 III. 1 Success factors  Good and efficient networking between all providers and professionals  Local press support  Mobility of the team : Café mémoire, Atout forme…  Necessity of finding nice and (often) unformal venue for meetings ie : café  Be aware of the needs of support for both person(s) with dementia and the carer(s) « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez

14. Titre présentation Sous titre Intervenant 14 14 mars 2011 14 III. 2 Opportunities of the rural context  Opportunities of nice and « natural activities »  Gardening  Enjoying nature and countryside (flowers, fruits, plants, animals), smells and sounds…  The « few » people know each other  Easy to go to the local market (small)  Possible to have walks outside « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez

15. Titre présentation Sous titre Intervenant 15 14 mars 2011 15 III. 3 Results of such projects in rural areas  They take into account the risk of isolation by breaking up monotony and lonelyness  They facilitate social life and meaningful activities in the community  They provide support and services to the population (home, close by home)  They are a relevant support in the process of acceptance in handing over to professional care. « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez

16. Titre présentation Sous titre Intervenant 16 Some quotes : « I’ll tell you what it feels like being an Alzheimer » « You at least do accept them (people with the disease) » « They come to get information, they learn how to meet each other » The bar tender : « My role : welcome participants, serve drinks, help them to relax, I want people to feel good, I am deeply touched and moved by what I hear during the afternoon » « To come at the memory café is to say that there is somebody ill at home » 16 « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez

17. Titre présentation Sous titre Intervenant 17 Thank you Merci Marie-Jo Guisset-Martinez guisset@med-alz.org www.fondation-mederic-alzheimer.org for your attention pour votre attention « Mobile support services to meet the users needs in rural French areas » March 28th,2011 Marie-Jo Guisset-Martinez