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THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011 aisbl

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Presentation on theme: "THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011 aisbl"— Presentation transcript:

1 THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011 www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

2 THE VOICE OF PEOPLE WITH CHRONIC PAIN Mission To improve the quality of live of people living with chronic pain in Europe www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

3 THE VOICE OF PEOPLE WITH CHRONIC PAIN Aims of PAE 1.To have chronic pain recognised as a disease in its own rights. www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

4 THE VOICE OF PEOPLE WITH CHRONIC PAIN Aims of PAE 1.To have chronic pain recognised as a disease in its own rights. 2.To create a greater awareness of chronic pain. www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

5 THE VOICE OF PEOPLE WITH CHRONIC PAIN Aims of PAE 1.To have chronic pain recognised as a disease in its own rights. 2.To create a greater awareness of chronic pain. 3.To promote a European policy on chronic pain. www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

6 THE VOICE OF PEOPLE WITH CHRONIC PAIN Aims of PAE 1.To have chronic pain recognised as a disease in its own rights. 2.To create a greater awareness of chronic pain. 3.To promote a European policy on chronic pain. 4.Reduce the impact of chronic pain on all areas of European society. www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

7 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achieved by; 1.Working closely with other stakeholders. www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

8 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achieved by; 1.Working closely with other stakeholders. 2.Gather and distribute relevant information on chronic pain from the patients point of view. www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

9 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achieved by; 1.Working closely with other stakeholders. 2.Gather and distribute relevant information on chronic pain from the patients point of view. 3.Promote and/or initiate research into chronic pain. www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

10 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achievements so far 1.Launch PAE November 29 th 2011. The launch of PAE in the European Parliament. Hosted by MEP Marian Harkin supported by EFIC by its President Hans Kress and DG SANCO by Albrecht Werner www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

11 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achievements so far 1.Launch PAE November 29 th 2011. 2.Official registration as AISBL January 25 th 2012 registration number is 843498142. Details; http://kbopub.economie.fgov.be/kbopub/toononde rnemingps.html?ondernemingsnummer=843498142 http://kbopub.economie.fgov.be/kbopub/toononde rnemingps.html?ondernemingsnummer=843498142 www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

12 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achievements so far 1.Launch PAE November 29 th 2011. 2.Official registration as AISBL January 25 th 2012 3.Launch website March 28 th 2012. The launch took place at the European parliament and was hosted by MEP Mr. Jim Higgins www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

13 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achievements so far 1.Launch PAE November 29 th 2011. 2.Official registration as AISBL January 25 th 2012. 3.Launch website March 28 th 2012. 4.PAE accepted by EMA April 10 th 2012. From that date PAE is eligible to be involved in the Agency’s activities. www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

14 THE VOICE OF PEOPLE WITH CHRONIC PAIN Achievements so far 1.Launch PAE November 29 th 2011. 2.Official registration as AISBL January 25 th 2012. 3.Launch website March 28 th 2012. 4.PAE accepted by EMA April 10 th 2012. 5.Registration transparency register April 25 th 2012. PAE received registration number 75559858669-77 www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

15 THE VOICE OF PEOPLE WITH CHRONIC PAIN Presentations 1.Presentation EFIC board. February 24 th 2012 PAE presented it selve to the EFIC board at the EFIC office. www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

16 THE VOICE OF PEOPLE WITH CHRONIC PAIN Presentations 1.Presentation EFIC board. 2.Presentation Public Hearing April 16 th 2012. The coordination group “European Year for Active Ageing and Solidarity between Generations 2012” organised a hearing on "Growing old in good health" www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

17 THE VOICE OF PEOPLE WITH CHRONIC PAIN Presentations 1.Presentation EFIC board. 2.Presentation Public Hearing April 16 th 2012. 3.Presentation 6 th patients’ rights day May 15 th 2012. Presentation on “Active Healthy Ageing” in Europe. Organised by Active citizen network whit support of European Public health programme, EESC and ALDE www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

18 THE VOICE OF PEOPLE WITH CHRONIC PAIN Presentations 1.Presentation EFIC board. 2.Presentation Public Hearing April 16 th 2012. 3.Presentation 6 th patients’ rights day May 15 th 2012. 4.Presentation EFIC council meeting May 29 th 2012 www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

19 THE VOICE OF PEOPLE WITH CHRONIC PAIN Collaborations with EFIC 1.During hearing April 16 th 2012 www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

20 THE VOICE OF PEOPLE WITH CHRONIC PAIN Collaborations with EFIC 1.During hearing April 16 th 2012 2.Commission public consultation on the EU Reflection Process on Chronic Disease. 3.Commitment on the European Innovation Partnership on Active and Healthy Ageing www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

21 THE VOICE OF PEOPLE WITH CHRONIC PAIN Collaborations with EFIC Future collaborations on any area we find suitable in the way to accomplish our mission www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

22 THE VOICE OF PEOPLE WITH CHRONIC PAIN Pain Alliance Europe aisbl info@pae-eu.eu www.pae-eu.eu Joop van Griensven, president PAE www.pae-eu.euwww.pae-eu.eu info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

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