1. Alcohol Can Harm Your Unborn Child Diane Black, Ph.D. Fetal Alcohol Syndrome Foundation of the Netherlands

2. No amount of alcohol is safe during pregnancy  Reduces fertility  Increases risk of miscarriage  Birth defects  Brain damage learning disorders and behavioral disorders Long term:  Unemployment  Mental illness  Criminality

4. FASD: Fetal Alcohol Spectrum Disorder  FAS: Fetal Alcohol Syndrome  FAE: Fetal Alcohol Effects  ARND: Alcohol Related Neurodevelopmental Disorder  pFAS: partial FAS  ARBD: Alcohol Related Birth Defects FAS FAE ARND pFAS ARBD F A S D

5. Acts young for age Argues a lot Can't sit still, restless, hyperactive Cruelty, bullying, or meanness to others Disobedient at home Doesn't show guilt after misbehaving Can't concentrate or poor attention Impulsive or acts without thinking Lying or cheating Showing off or clowning Steals from home Steals outside Study--Child Behavior Checklist Nash et al.(Arch Womens Mental Health, 2006)

6.  Mental illness >90%  Early school leavers 60%  Trouble with the law 60%  Institutionalization (psychiatric, drugs- or alcohol addiction treatment, prison) 50%  Inappropriate sexual behavior 50%  Alcohol or drug addiction 30%  Dependent living 80% of those over age 21 Streissguth et al. (CDC, 1996) Long term outcome

7. Child with FAS Adult with FAS Prevention Doctor, midwife Researchers Professionals Doctor Psychologist Social worker Dietician Special education teachers Physical therapy Play therapy Speech therapy ParentsSchool Support parents Foster care Professionals Supervised living and working Judges Prison workers Mental health care workers Drug and alcohol addiction 7

8. Financial cost of FASD Canada (Stade et al. 2009)  1% of live births has FASD  Estimated costs included: Medical, educational, social services, loss of parent’s productivity (time off for doctor visits)  Did not include loss of productivity of adults with FAS  Did not account for parents who quit work to care for child(ren) with FASD  Total annual costs per person with FASD: $ 21, 642  Total annual costs for Canada for FASD: $ 5.3 billion

9. Many babies in Europe are prenatally exposed to alcohol  Netherlands: 35-50% of pregnant women drink (Health Council of the Netherlands)  Spain: 45% of babies in Barcelona heavily exposed (Garcia-Algar, 2008)  Ireland: 63% of women drink during pregnancy (Coombe Women's Hospital, Dublin)

10.  Young school children in the US: 20 to 50 per thousand FASD (May et al., 2009).  6-year-olds in Lazio region of Italy: 20 to 40 per thousand FASD (May et al., 2006).  School children in Croatia: 40 per thousand FASD (Petković & Barisić, 2010). Prevalence FASD

11. What can Europe do? (1) –Measure the problem  Conduct active case-ascertainment studies of prevalence in each country. –Prevention  Develop clear guidelines based on best scientific evidence.  Make sure that the info gets to professionals (training, literature).  Make sure that the info gets to pregnant women (via doctors and midwives, direct public outreach such as tv, radio, labels on bottles). 11

12. What can governments do? (2) –Support of people with FASD  Support research into best practices in education, medical care of people with FASD  Train professionals (health-care, justice, education) to recognize and manage FASD  Provide adapted special education, supervised living and work environments for adults with FAS. 12

13. More information: www.eufasd.org