1. SERVING PEOPLE, SAVING LIVES Grant Writing Workshop Tyler Affiliate 2010

2. We are on a mission. Welcome! Introductions & Welcome Housekeeping –Restrooms –Cell Phones –Open format… ask questions –Not a technical workshop –Collaboration… Networking

3. We are on a mission. Workshop Objectives What are you looking to take home from today?

4. We are on a mission. Workshop Objectives Identify local funding opportunities Emphasize community needs and what programs will receive priority for funding Review basic components of a grant proposal Emphasize need for impact illustrated in programs and evaluations Provide opportunity for collaboration among agencies

5. We are on a mission. Agenda About Susan G. Komen for the Cure Breast Health Programs & Advocacy Community Profile Request for Application– a roadmap Compliance and the Grant Reviewers Perspective Measuring Impact & Evaluation Lunch/Networking

6. We are on a mission. Susan G. Komen for the Cure ® Susan G. Komen for the Cure ® Tyler Affiliate OUR VISION: A WORLD WITHOUT BREAST CANCER

7. We are on a mission. Our Story Born in a promise –Born in a promise between two sisters – Nancy Brinker to her sister, Susan G. Komen, who died from breast cancer at the age of 36 – Susan G. Komen for the Cure is the world’s largest and most progressive grassroots network fighting to end breast cancer forever.

8. We are on a mission. Our Promise Our Promise is our mission –To save lives and end breast cancer forever by empowering people, ensuring quality of care for all and energizing science to find the cures. Our Vision A world without breast cancer.

9. We are on a mission. Komen I nclusion to embrace the uniqueness of every individual S tewardship to be accountable for our performance, individually and collectively H onesty to foster a community of trust and integrity O penness to seek out new ideas and new ways of thinking P assion to demonstrate personal commitment to our Promise E mpowerment to entrust others and hold yourself accountable Our Values

10. We are on a mission. Our Organization 501(c)3 public charity; Headquarters, Dallas, TX; Volunteer-driven, grassroots organization; –More than 125 Affiliates across the United States; –International Affiliates (Germany, Italy, Puerto Rico). The National Susan G. Komen For the Cure Affiliate

11. We are on a mission. Our Affiliate Service Area Tyler Initially 4 counties –Pima, Yuma, Santa Cruz and Cochise Expanded in 2004 –to include Graham and Greenlee Cochise Graham Greenlee Pima Santa Cruz Yuma

12. We are on a mission. Our Tyler Affiliate Race Statistics First Tyler Race for the Cure in 1999 –3,400 participants and $217,270 raised 2010 Race for the Cure – 12 th Annual –12,366 participants and $1.3 million raised

13. We are on a mission. Our Work We are world’s largest grassroots network of breast cancer survivors and activists. Next to United States government, Susan G. Komen for the Cure is recognized as world’s largest source of nonprofit funds solely dedicated to fight against breast cancer. Susan G. Komen for the Cure fights breast cancer on all fronts.

14. We are on a mission. Our Work – Empowering people, ensuring quality care for all – Community Based grants and local outreach services providing education and support to thousands of community health organizations25% – Energizing science – Transformational research from the discovery of the key genes linked to breast cancer to the development of revolutionary treatments and therapies, Susan G. Komen for the Cure has supported virtually every major advance in breast cancer research75%

15. We are on a mission. Energizing Science – Our Work 25% – Energizing science – Transformational research from the discovery of the key genes linked to breast cancer to the development of revolutionary treatments and therapies, Susan G. Komen for the Cure has supported virtually every major advance in breast cancer research over the past 25 years. Through national research grant funds, nearly $2 million has returned to our community through grants made to the University of Arizona

16. We are on a mission. Ensuring Quality Care – Our Work 75% – Empowering people, ensuring quality care for all – Community based grants provide education and support to thousands of community health organizations – Community Grants – Outreach and Support – Grassroots Advocacy

17. We are on a mission. Our Impact Today –With nearly $1 billion invested to date, Susan G. Komen for the Cure is the world’s largest source of nonprofit funds dedicated to curing breast cancer at every stage – from the causes, to the cures, to the pain and anxiety of every moment in between.

18. We are on a mission. Our Impact Research - Finding the Cures Komen for the Cure funded research conducted by some of earliest pioneers in targeted therapies.  Early work diagnosing HER 2 positive breast cancer and using drug Herceptin to treat it.  Dr. Judah Folkman’s concept that tumors need blood supply to continue to grow – years later, resulted in effective treatments such as Avastin.  First supporters of Dr. V. Craig Jordan – pioneered use of tamoxifen as a hormonal breast cancer treatment. A drug that blocks hormones from “feeding” tumors.  Komen funds helped Dr. Angela Brodie pioneer discovery of aromatase inhibitors, which can keep cancer from recurring.

19. We are on a mission. Our Impact Driving Change Needs Assessment – Community Profile Closing the gaps through grassroots efforts

20. We are on a mission. Our Impact Providing Community Support Komen is the community contact for all breast health needs Empowerment and local support

21. We are on a mission. Our Impact Meeting Community Need Since 1999, we have invested over $4 million in local grants to agencies in our Tyler communities. In 2010 over $500,000 went to local organizations that provide mammograms, treatment and breast cancer prevention and education information Funded to date: –Community Grants$ 4,239,328 –Research$ 1,779,104

22. We are on a mission. Susan G. Komen for the Cure Community Grant Program The Grants program is designed to drive community agencies and health care institutions to address the gaps and disparities in breast health care in our respective areas. Grant proposals that address the statements of need and community needs assessment of their respective affiliates receive greater priority for funding during the review process.

23. We are on a mission. Susan G. Komen for the Cure Tyler Community Grant Program These projects reach those who are Medically underserved Uninsured Underinsured

24. We are on a mission. Community Grants Large Grants – Direct Treatment Focus - Surgery, Chemotherapy Radiation – Screening, Support, Education, Outreach, Prevention Focus Small Grants – Conference (less than $5,000) – Travel (less than $1,000 domestic; $2,000 international) – Support Grants (less than $2,000)

25. We are on a mission. Susan G. Komen for the Cure Grant application process Tyler Opens: June 16, 2010 Closes: September 10, 2010 Grant Cycle: December 1, 2010 – November 30, 2011 Website for specific information: komensaz.org

26. Breast Health Programs

27. We are on a mission. 2009-10 Funded Grants 46% Treatment 24% Screening 30% Education

28. We are on a mission. Barriers/Obstacles to Care No access due to no insurance No access due to not being able to afford services Loss of jobs and insurance Lack of available services from providers Rural areas lack services and providers Rural areas lack of transportation

29. We are on a mission. Komen’s Outreach and Education Outreach to Medically Underserved Making presence in community and rural areas with our outreach & education Other organizations health fairs/events Speaking to community organizations

30. We are on a mission. Advocacy Susan G. Komen Lobby Days in May 2010  Access to breast health care by increasing funding of national programs  Continue research into innovatirve technologies for screening for breast cancer Arizona State Lobby Day with ACS in March 2010  Oral chemo be treated same as intravenous  Continue funding Well Woman

31. We are on a mission. 2009 Community Profile Report Key Findings

32. We are on a mission. Objectives Of the Community Profile Provide a framework of service areas needs Identifies gaps in services, education and outreach needs Pinpoints areas to concentrate public relations Touch on Future Trends

33. We are on a mission. Community Profile Impact The Community Profile report becomes the driving force behind the Affiliate The profile allows the organization to: Affect change and positively impact breast health and breast cancer needs Drive the organization’s strategic plan developed by the Board of Directors Provide operational focus, consistent with our promise/mission Establish priorities for local grant application and review processes Determine educational and outreach priorities Set priorities for public policy initiatives Identify and establish opportunities for partnerships with all types of community groups and agencies.

34. We are on a mission. Key Findings in Tyler High levels of poverty and lack insurance. Rural nature of several counties contributes to an inequitable distribution of breast health services and transportation issues. Hispanics comprise a high percent of the residents; immigration issues that limit their access to care Indian reservations lie within 3 of the counties with 2 Indian Health Service hospitals; however, little is known about the breast health needs of the Native American women. Younger Hispanic women are being diagnosed with breast cancer with high mortality rates.

35. We are on a mission. Key Findings Tyler Priorities Priority 1: Improving Access to Care Priority 2: Outreach and Education Priority 3: Survivorship Issues

36. We are on a mission. Tyler Service Area

37. We are on a mission.

42. Future Trends Economic effects –Well Woman HealthCheck Program (budget cuts) Screening and treatment –Creating a balance of screening and treatment –Ensure treatment services are available to women who are screened Young Hispanic Women –Increasing number of younger Hispanic women being diagnosed –May shift outreach and education initiatives

43. Request for Application A roadmap for completing

44. We are on a mission. Writing a Grant From Planning to Evaluation Planning the Proposal Writing the Abstract Program Description/Developing the Proposal Budget/Financial Information Biographical Information Proof of non-profit status Progress report or final report for current and previously funded grant recipients

45. We are on a mission. Planning the Proposal Do your homework! –Komen: your funding organization: promise, history, activities, funding priorities, community profile, etc. Before you begin... –Consider how your project “fits” with the funding organization’s philosophy and mission; –Explore opportunities for collaboration with others in your community to reduce duplication.

46. We are on a mission. Writing the Abstract First impressions are important! –The abstract is the reviewer’s first impression of your proposal. Characters versus words Key Points –Purpose of program –Description of key activities –Summary of evaluation methods –Likely impact of program Be brief! Be specific!

47. We are on a mission. Program Description 8 page limit Background –Description of organization history, mission and goals –current programs and recent accomplishments Statement of Need/problem –Why is project needed? –Description of population to be served –Review comparable programs offered--how will this program be unique

48. We are on a mission. Program Description (cont) Goals and Objectives –Specific –Measurable –Achievable –Realistic –Timebound –How address priorities in Community Profile Activities and Timeline –Month by month timeline for implementation Collaboration –Describe other organizations or entities participating

49. We are on a mission. Program Description (cont) Organizational Capacity –Your experience serving the target population –Why is your organization best suited to carry out the program?

50. We are on a mission. Program Description (cont) Sustainability –Explain how this program and its impact will be sustained long-term –What resources will be needed to sustain –How will resources be secured –Demonstrate other sources of funding will be sought

51. We are on a mission. Project Description: Methods & Administration Methods (Activities) –Answers: How? When? Why? Who? –Helps reviewer visualize program implementation. Administration –Answers: Who will be responsible for which tasks?

52. We are on a mission. Project Description: Program Evaluation Evaluation is “the comparison of an objective of interest against a standard of acceptability” (Green & Lewis) Two types –Process evaluation: Identifies strengths and weaknesses of a program, processes of providing services and how outcomes are produced; –Impact evaluation: Compares program results against the objectives –Include both types

53. We are on a mission. Project Description: Organizational Information This is your statement of strength –Brief overview of the history, structure, primary activities, audiences and services of your organization. –Temptation is to put this first — DON’T. –Sell the reviewers on your idea, then prove your history of success.

54. We are on a mission. Projects become reality because the central idea is sold, not because the proposal is cheap! Be realistic! Ask for what you need Justify expenses — Do they follow with the narrative? Use budget forms provided Financial Information Budget and Expenses

55. We are on a mission. Helpful Hints Read the RFA carefully — follow ALL directions. Do not ask for items that the grant excludes. Be innovative, passionate, realistic, specific. Write clearly: use the active, rather than passive voice. Avoid jargon; spell out acronyms on first use. Consider headings to improve readability. Think like a reviewer: make it clear, easy to read, and organized. Review the budget section for accuracy.

56. We are on a mission. Proof Reading the Proposal Allow sufficient time to put the completed application aside, and then edit it from a fresh vantage point. Try proofreading by reading the application aloud. Scour the grant proposal for typos, grammatical mistakes or sloppy formatting. Ask someone in your organization, but not part of the proposal committee, to perform a final proofread of the entire grant application. It should be easy to understand by all.

57. A Grant Reviewer’s Perspective

58. Community Profile

59. We are on a mission. Findings and Priorities Improving access to care Outreach and Education Survivorship Issues

60. We are on a mission. Priority 1: Access to Care Financial resources, especially for women who are under insured or uninsured Treatment services especially in rural areas and small communities Funds for treatment

61. We are on a mission. Priority 2: Transportation For screening, diagnosis, and/or treatment Especially from Graham, Greenlee and Santa Cruz counties Rural and outlying areas of Graham, Greenlee and Cochise counties

62. We are on a mission. Priority 3: Education and Outreach General population as specific at risk groups –Native Americans –Hispanics –Lesbian, Bisexual and Transgender (LBT) women Health professionals –Conducting clinical breast exams –Current breast health guidelines –Risk, identification and treatment of lymphedema –Incidence of aggressive breast cancer in young Hispanics

63. We are on a mission. Priority 4: Survivorship Issues Affordable complementary therapies Continuum of care services or patient navigation Lymphedema management –Especially in areas outside of Benson, Tucson and Yuma

64. We are on a mission. Next Steps Application Deadline –Postmarked no later than September 10, 2010 or in office by 5 PM Overview of Review Process –Compliance review - September –Local peer review – early October Board Approval Process – Mid October Notification of Applicants – End of October Contract begins - 1 December 2010

65. Lunch/Networking

66. We are on a mission. Introductions Your name, title and the organization you are representing. Tell us the area of focus for your program/organization.

67. We are on a mission. Networking Topics Are there any missed opportunities for collaboration among agencies? What are some ideas for ways we can cover the un-insured and underinsured? Ways to provide transportation- Ethical issues

68. We are on a mission. Networking Topics Other ideas….. Other questions…

69. THANK YOU!!!