1. Illawarra Regional 2015 National Respite 19 February 2015

2. Agenda 1.Welcome12:30 2.Policy Landscape Update12:45 3.Discussion of Policy Issues13:00 4.National Respite Activity13:30 5.Open Forum Discussion14:00 6.Close14:30

3. 1.1 National respite Communities of strong relationships that support the lives people choose Support interconnected wellbeing between people with disability, frailty from age, mental illness and their chosen carers, families, and informal supports

4. Last meeting issues 1.Non-respite carer support future funding 2.>65 people with disability – access to supports 3.Emergency respite and crisis care 4.Accommodation pricing and quoting 5.Transport costing 6.Planning process and engagement of families and clients 7.Case co-ordination

5. Carer Care recipient Respite Care Carer support ? 37 NDISCHSP Integrated Carer Support Programme (DSS) 3.1 Respite and carer support in 3 systems Mental Health

6. Policy Landscape Update – Respite Disability (NDIS) Significant changes for carers and respite services: Outcomes framework for NDIA 5 strategic outcomes for carers and families: Families/carers 1.have the support they need to care 2.know their rights and advocate effectively for the person they are caring for 3.are able to gain access to desired services, programs and activities in their communities 4.have succession plans 5.enjoy health and well-being Respite language to be restored: – ‘currently not listed but respite outcomes are – Recognise ‘the service type that cannot be named.’ Flexible bundling of supports? Further consultation this year on respite in NDIS Commitment to include funding for emergency respite in plans Big changes to Tier 2 NDIA ecommerce website for providers and customers Issues  Emergency respite  Carers in planning process  “Respite”  Carer support and Tier 2 services Recent Developments 5 strategic outcomes for carers and family More expansive Tier 2 Respite explicitly recognised in Tier 3 Commitment to include funding for emergency respite in plans “

7. Policy Landscape Update – Tier 2 “NDIS stands and falls on strong Tier 2 support for those just outside funded plans” Bruce Bonyhady Tier 2 :now Linkages, Information and Capacity building. NDIA paper released yesterday: where are – volunteer model – flexible supports Consultations until late March 2015 Role of Ability Links and LACs – – NSW contribution to Tier 2?

8. Policy Landscape Update – Tier 2 NDIA paper – five streams 1.Information, linkages and referrals 2.Capacity building for mainstream services 3.Community awareness and capacity building 4.Individual capacity building 5.Local area co-ordination

9. Policy Landscape Update – Tier 2  Individual Capacity Building stream supports which are ‘one-off, low level or episodic’ 1.Programmes for carers and counselling for people who are caring (disability &/or mental illness) 2.Parent breaks and programmes to provide parents with skills and information about disability 3.Professional development (including for parents) 4.Diagnosis specific peer support groups 5.Disability specific support providers can be funded here  Other streams for mainstream community or LAC role

10. Policy Landscape Update - CHSP Respite issues Outcome 6 Care relationships 3 types: cottage, emergency, flexible Grow flexible respite Trial cashing out Issues Carer/care recipient goal conflict Inflexibility of non-residential respite – hours, continuity of staff, training, rural remote Gaps in secure residential respite? Dementia and younger onset Approach Supporting challenging behaviours Learning from CDRC & disability: – Drawing in informal supports – Out of pockets Pilots, training, best practice

11. Policy Landscape Update - CHSP Respite issues Issues for Respite & Carers Unmet need – 15.8% Access: – 12% not used because primary recipient unfavourable – 10% information gaps Eligibility for carers Carer support – funding Carelink information? Transition for NRCP clients Innovation and evaluation: – Early intervention respite – Flexible respite CHSP contracts 1.Extension to 2017 for output services 2.NRCP incorporated, & <65 grandfathered 3.Non-output services 1 Q16 extension 4.Review of CSIA and non- output services 5.Competitive tender

12. Mental health Systemic issues  Recovery vs. permanent disability  Underfunding of respite  Different emergency respite needs Recent developments  NHMC report with government  MHR-CS – NDIS different agreements  Minister Fifield announced extension of MHR-CS for another 12 months  NDIS funding Mental Health Australia to support capacity building

13. Carer Support Issues  Service systems moving in different directions for carers NDIS vs CHSP  Need for single point – especially for 11% caring across service systems  CHSP – NRCP absorption  Concerns  particular client groups – young carers, rural & remote, CALD, Indigenous  loss of expertise, referral pathways Recently…  CRCC contracts will be extended to 2017  Government developing integrated carer support model  Co-design with carers and service providers  Minister Fifield – carer supports outside NDIS & single carer assessment  Minister Morrison – importance of carers  But issue of different state funding ‘base level of community support’

14. Policy Landscape Update – Carer Support DSS Karen Wilson in charge of carer support policy Designing ‘Integrated Carer Support Programme’ to roll out nationally across all service sectors Consultations this year on what carer support should look like. Young Carer Program and other carer peer support programs most discussed by services

15. Top 2 Policy Issues? What are the two most pressing respite policy issues for Illawarra/Sutherland Shire???

16. National Respite Activity Trial site update: i.Emergency Respite (Forums and DSS proposal) ii.Co-ordination of supports iii.Accommodation (short-term including host family) iv.Transport and travel (Submission)

17. Preparing Families for an NDIS Plan National Respite resource created with CarersNSW, ARAFMI, two trial site services and other providers Steps with linked resources Mental Health Australia and Carers Australia capacity building project Interchange Illawarra NDIS Workshops

18. Research Update Transitioning Respite Volunteer/Flexible family project CMS Project Marketing Project

19. Open Discussion Areas for more intelligence?