1. www.carers.org www.youngcarers.net © Carers Trust A Road Less Rocky- Supporting Carers of People with Dementia Social Policy Research Unit University of York and Firefly Research and Evaluation Julia Ellis, Development Manager, Carers Trust.

2. www.carers.org www.youngcarers.net © Carers Trust Critical points along a carer’s journey where they would most value information and support. When dementia is diagnosed; When the capacity of the person with dementia declines; When the carer needs emotional support or a break from caring; When the person with dementia loses their mobility; When the carer has to cope with behaviour problems; When the carer’s own circumstances change; When the person with dementia becomes incontinent; When decisions about residential care have to be made; When decisions about end-of-life care have to be made.

3. www.carers.org www.youngcarers.net © Carers Trust Key recommendation: Identify the carer as soon as possible, even if the person with dementia hasn’t accepted his or her own need for support.

4. www.carers.org www.youngcarers.net © Carers Trust For more information email Julia Ellis at jellis@carers.org or call 07909 967862 Thank you