1. Delaware Lifespan Respite Care Network Using Data to Support an Innovative Respite Network November, 2011 Using Data to Support an Innovative Respite Network November, 2011 When you need a break

2. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 2 Dr. Barbara Snyder Project Manager, Delaware Lifespan Respite Care Network Director of Corp/Fdn. Relations, Easter Seals DE & MD’s E. Shore Janet Harper-Wooley Senior SW/Case Manager, Division of Service for Aging and Adults with Physical Disabilities Presenters

3. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 3 Program Overview: Delaware Lifespan Respite Care Network How We Got Started: What We Do: Help Family Caregivers Find Respite Care Fund Respite Care Where You Can Find Us www.delrespite.org

4. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 4 Introduction/Overview of Data Collection  Why Use Data  How Do You Get Started  Data Collection Points for DLRCN  How We Use Data  Lessons Learned – Tips to Take Home

5. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 5  Program Development/Modification  Customer Satisfaction  Program Outcomes  Accountability Why Use Data

6. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 6 How Do You Get Started  What is the Question you want to answer?  Who do you need to ask?  What is the best way to ask?  How will you use the information you gather?

7. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 7 What were the Questions We Wanted to Answer Pre-Service Delivery  How great is the need for respite care?  Are current programs meeting the need for respite care?

8. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 8 Who are We Going to Ask?

9. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 9  Quantitative  Qualitative What is the best way to get information?

10. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 10  Pre-Service Deliver –  Focus Group – U of DE Task Force  Two surveys – Family Caregivers & Providers  Focus Groups – Coalition members  Annually –  Application for Financial Assistance  Customer Satisfaction Survey  Financial Accounting Data Collection Points for DLRCN

11. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 11  Program Development/Modification  Customer Satisfaction  Program Outcomes  Accountability How We Use the Data

12. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 12  Participant Profile –  Use by  county  age  disability Program Modification

13. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 13 County Statistics Co.Fin. Asst. Recipients Genl. Pop. N Castle70.6%60% Kent14.7%18% Sussex 9.6%21%

14. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 14

15. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 15 Program Modification Financial Assistance Application: Need a provider?59.6% No 40.4%Yes

16. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 16 Did your respite time make you feel more refreshed and less stressed? Results: 2009 YesNo 91.7%8.3% 20105-Point Likert Scale Very SomewhatNot at All 51.9% 25.9% 18.5% 3.7% 0.0% Program Outcomes

17. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 17  For Whom – funders, key stakeholders  What –  Outputs  Outcomes  Use of dollars Accountability

18. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 18  Do it  Make it simple  Make changes  Share what you learn Lessons Learned – Tips to Take Home

19. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 19 Where you can go for resources www.delrespite.org History tab – reports that include data Give me a business card, and I’ll email: Initial family caregiver/provider surveys Customer satisfaction survey Financial Assistance application

20. Delaware Lifespan Respite Care Network 10/25/10 Delaware Lifespan Respite Network www.delrespite.org 20 Practice Activity

21. Thank You Delaware Caregiver Support Coalition Contact me at: Barb Snyder Easter Seals DE & MD’s E. Shore bsnyder@esdel.org 302-324-4444 Delaware Caregiver Support Coalition Contact me at: Barb Snyder Easter Seals DE & MD’s E. Shore bsnyder@esdel.org 302-324-4444