1. The Caregiver Journey The Caregiver Journey “When one is sick, two need help”

2. The Caregiver Journey The Caregiver Journey TODAY’S FAMILY CAREGIVERS... Provide 80% of all long term care Include 52 million caring for adults 29.2 million help ill or disabled adults aged 18+ with activities of daily living 8.9 million care for someone aged 50+ with dementia Will increase by 85% by the year 2050

3. The Caregiver Journey From the hospital to the home... Medical advances Shorter hospital stays Limited discharge planning

4. The Caregiver Journey Family caregivers provide $350 billion dollars of care a year – for “free” Paid home healthcare -- $32 billion Nursing home services -- $92 billion Care for Alzheimer’s patients costs families approximately $23,436 The cost of care...

5. The Caregiver Journey Higher mortality rate Depression affects 30-59% of family caregivers Increased risk for chronic conditions such as coronary heart disease, cancer, and diabetes The physical and emotional toll on caregivers...

6. The Caregiver Journey Acute Illness Accidents Chronic Illness When Illness and/or Disability Strike...

7. The Caregiver Journey ShockDenial/Minimization Emotional Overdrive Life is put on hold to deal with crisis Impact of the Initial Diagnosis – The Acute Emotions

8. The Caregiver Journey Sadness, grief, depression Dread Anger, anxiety Guilt Loneliness, isolation Impact of the Initial Diagnosis – The Chronic Emotions

9. The Caregiver Journey The Heroic Stage The Ambivalence Stage The “New Normal” Three Stages –